tag:blogger.com,1999:blog-114469982024-03-14T09:00:49.644+14:00BEATING HEPATITIS Cstevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.comBlogger48125tag:blogger.com,1999:blog-11446998.post-30561016398635687332008-10-04T06:41:00.002+14:002008-10-04T06:47:02.539+14:00MED STUDENTSThis is a message to the 4 medical studants that I saw today.<br />If you are reading this thanks for taking an interest in my Haemophilia and Hep C today, if you need any more information you can email me at <a href="mailto:bartramstv@ntlworld.com">bartramstv@ntlworld.com</a> I would be more than happy to help.<br /><br />Also here are some links that might help you<br /><br /><a href="http://www.archercbbp.com/">http://www.archercbbp.com/</a><br /><br /><a href="http://www.haemophilia.org.uk/">http://www.haemophilia.org.uk/</a><br /><br /><br />Stevestevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com2tag:blogger.com,1999:blog-11446998.post-73340093938532865152007-11-17T12:32:00.000+14:002007-11-17T12:38:31.011+14:00Catching Up Big TimeHello everyone in blog world, I have neglected my blog really badly for the last few months. My last post was injection number 5, well I am now on injection number 23 of 24 and I do number 24 on monday night. I have had a rough time during TX but a lot better than some people I have spoke 2.<br />I am having a little blog re-design at the minute so it might look a bit strange untill I get it how I want.<br />Speek soon<br />Stevestevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com5tag:blogger.com,1999:blog-11446998.post-37855048726941415352007-07-11T10:45:00.000+14:002007-07-11T10:53:27.840+14:00Injection 5 and eyes<a href="http://bp2.blogger.com/_CwyoX9b1Q0U/RpPxdc5QvYI/AAAAAAAAAAc/XfuAHWS0HHg/s1600-h/eyes.jpg"><img id="BLOGGER_PHOTO_ID_5085673892506287490" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://bp2.blogger.com/_CwyoX9b1Q0U/RpPxdc5QvYI/AAAAAAAAAAc/XfuAHWS0HHg/s320/eyes.jpg" border="0" /></a><br /><div>Hi all, Injection 5 went fine last night no problems at all apart from the usual feeling down, I have been looking forward to going to London for the public enquiry but again I am worried about my eyes, I woke this morning and could hardly open them (I am putting a picture above), after a while they settled down a bit they have been agony all day and I dont really trust them to drive to London tomorrow. Has anyone heard of this or seen this before. I look forward to your responces. Steve. PS these are NOT what my eyes normaly look like!</div><br /><div></div>stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com8tag:blogger.com,1999:blog-11446998.post-63602887354310073612007-07-04T10:45:00.000+14:002007-07-04T10:50:32.828+14:00Injection Number 4I had my forth Interferon jab last night, I didnt go to well it was quite painfull and bled a little, but its gone and out of the way I slept well and worked all day today. I have kept the empty box as a sort of landmark, one down 5 to go. I get my next meds monday morning.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com5tag:blogger.com,1999:blog-11446998.post-87290257911820099882007-06-28T10:40:00.000+14:002007-06-28T10:41:32.248+14:00GENOTYPE BLOOD RESULTSAs some of you may be aware I am in my third week of treatment, when I got my pre treatment blood results it showed that I was genotype 2b when I have always been told that I was Genotype 1a. I was last tested in 2001 and that showed that I was Genotype 1a but my nurse told me that back then the tests were unreliable, anyway she done another genotype test last week and she phoned me with the results today, I AM GENOTYPE 2B, when she told me I nearly bloody cried I am so happy, I cant really explain how I feel all you heppers will have a good idea though. My treatment has been cut to 24 weeks . I had a tub of 48 marbles and one tub with 3 marbles in, I put one in the other after each jab someone else done this a while ago just to help her get through it, anyway I took 24 marbles out today god that felt good. I am so happy I just want to tell everybody. Just one thing, how many people are doing 48 weeks when they don't need to? Makes you wonder don't it? God bless the NHS. I put off treatment for 5 years because I didn't think I could do 48 weeks. I could have been clear by now! Why cant they get it right? Why wasn't I tested for 6 years if they knew the blood tests were not reliable? Just a few questions for my consultant when I next see him. I am so happy and I wish everyone was as fortunate as me, I wish us all rid of this virus. Stevestevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com4tag:blogger.com,1999:blog-11446998.post-85586721186252181232007-06-27T06:52:00.000+14:002007-06-27T06:55:38.501+14:00# Injection 3I done Interferon number 3 last night much the same as last week really. I was so fed up afterwards I just went to sleep, felt ok this morning just washed out. I still do not know which Genotype I am still waiting for my blood results.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com0tag:blogger.com,1999:blog-11446998.post-19891778047881078642007-06-20T10:47:00.000+14:002007-06-20T10:51:26.300+14:00# Injection 2I took my second Interferon jab last night, I dont know why but soon after the Jab I feel really down and p"£$£d off, I feel like I just want to be alone is this normal? I felt ok today just a bit washed out if thats the right word. Just a short post tonight I feel quite tired.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com0tag:blogger.com,1999:blog-11446998.post-61780578389827220692007-06-19T07:52:00.001+14:002007-06-19T08:09:20.250+14:00Genotype 1 2 or 3 or all?Hi, I had an <span class="blsp-spelling-error" id="SPELLING_ERROR_0">ok</span> weekend I felt a bit bad but worked through it. I have got injection number 2 tonight deep joy.<br /><br />I went to hospital for some blood tests today, while I was there my nurse got my <span class="blsp-spelling-error" id="SPELLING_ERROR_1">pre</span> treatment blood results up on her <span class="blsp-spelling-error" id="SPELLING_ERROR_2">pc</span>. Picture this scene ( you just cant make this shit up ) she <span class="blsp-spelling-error" id="SPELLING_ERROR_3">cliked</span> on my blood results and it showed I was Genotype 2b, I have been told since I was diagnosed that I was Genotype 1 and my last blood test was in 2001. My nurse told me that the blood test results back then were very unreliable so I could be Genotype 2 and not 1. BUT! Yes there is always a but, because I had so much factor 8 back then I could have multiple infection. I handed over some more of the red stuff so they can do another Genotype test. FINGERS CROSSED. I phoned Martin B and asked his advice and he was very positive and said test are rarely wrong these days so I could be Genotype 2 and as we all know I may stand more chance of clearing the virus in a shorter time. Here's hoping ;-)stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com2tag:blogger.com,1999:blog-11446998.post-36243258018729211352007-06-15T10:37:00.000+14:002007-06-15T10:48:14.573+14:00WORST DAY SO FARMe again, well today has been my worst day so far, I <span class="blsp-spelling-error" id="SPELLING_ERROR_0">didnt</span> sleep well last night only a few restless hours which is why I feel so shit today. I tried to work all day today but <span class="blsp-spelling-error" id="SPELLING_ERROR_1">couldnt</span> manage it <span class="blsp-spelling-error" id="SPELLING_ERROR_2">ive</span> felt really washed out achy just really drained, but so far I can cope with it. I told one of the guys at work today about my <span class="blsp-spelling-error" id="SPELLING_ERROR_3">haemophilia</span> and hep c, he is responsible for the firm I work for so he really needed to know, I think I shocked him a bit but he was really good and told me to take as much time off as I needed with no questions about where I am. Cheers Bob.<br />I am going to take my <span class="blsp-spelling-error" id="SPELLING_ERROR_4">Ribavirin</span> now and go to bed. See ya.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com2tag:blogger.com,1999:blog-11446998.post-5503424959718366102007-06-14T07:09:00.001+14:002007-06-14T07:24:08.598+14:00Rough morningsHi all what a day, I woke up this morning with a bit of a stomach ache, I have found I feel rough in the mornings but as the day goes on I feel better. I worked all day again today apart from about 30 minutes when I went home for a sit down because I felt a bit ill.<br />As you know I am a cab driver and today I done a job for a friend of mine, it was to pick up a lady with downs syndrome from a day centre and take her home. I really felt that my problems were nowhere as bad has hers and I should count my blessings. There is always someone worse off than you!<br /><br />A note to Jason and Ross<br /><br />Unfortunatly I am not going to go to the enquiry tomorrow I dont know how im going to feel in the morning and I would have to get up early because I am about 2 hours away from London, I will travel down the night before for the next hearing. Sorry to let you down.<br />Stevestevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com0tag:blogger.com,1999:blog-11446998.post-73241433994191239762007-06-13T08:24:00.000+14:002007-06-13T08:40:13.528+14:00The morning afterWhere do I start, I know my nights sleep. I went to bed after meds and had a restless night I think that was due to worrying about the sides and not the sides giving me grief. I woke this morning and was really cold and shivering, I had some paracetamol and got dressed and then it was really weird it was like turning a light on I came over all hot and sweaty so much so I had to change my shirt. By this stage of the morning about 8.30am I felt ok a bit achey but ok so I went to work. I took my riba about 10.30am along with some paracetamol and I still didnt feel to bad so I carried on working all day. When I finished work and still now I feel quite sick and I ache like hell mainly my legs.<br />Lisa my better half cooked a roast for me tonight we sat down to eat I had two mouthfulls and was gagging I ran upstairs but was not sick. Is this normal? and the aching legs is this normal? Answers on a post card please!<br />I off now speak tomorrow.<br />Steve.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com3tag:blogger.com,1999:blog-11446998.post-17982849585971643352007-06-12T11:16:00.000+14:002007-06-12T11:18:54.174+14:00#Injection 1 continuedI done it took my riba and my jab the stomach worked for me. I going now I feel a bit down its all to real now.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com3tag:blogger.com,1999:blog-11446998.post-19656952220300798672007-06-12T10:22:00.000+14:002007-06-12T10:32:57.385+14:00# Injection No 1Hi all I am about to do my first injection and my first pills, I plan to do them about 10pm its 9.25pm now. I have decided to inject myself in the 'Love handles' as recommended by Jae. I am going to get my interferon out the fridge for half an hour and while thats warming up I am going for a long hot bath. I will post again after TX, wish me luck Stevestevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com0tag:blogger.com,1999:blog-11446998.post-79385655174511903872007-06-11T10:09:00.000+14:002007-06-11T10:20:46.608+14:00LESS THAN 24 HOURS TO GOOh well less than 24 hours to go before my first injection and pills and to be honest I feel quite positive, this is mainly due to a great deal of support from the Hepatitis C Forum. <a href="http://www.hepcukforum.org">http://www.hepcukforum.org</a> I am going to post twice tomorrow night once before meds and after to let you know how I got on. I would just like to say a special thankyou to Martin for his kind words and to everyone else on the forum.<br />Tomorrows coming quick.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com1tag:blogger.com,1999:blog-11446998.post-78736227972806189872007-06-09T12:43:00.000+14:002007-06-09T13:23:39.860+14:00Curry and Family and CabsA cab the same as mine.<br /><br /><br /><a href="http://bp2.blogger.com/_CwyoX9b1Q0U/RmnkrkchFeI/AAAAAAAAAAU/_75lsZPyT8w/s1600-h/taxii.bmp"><img id="BLOGGER_PHOTO_ID_5073837892378367458" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://bp2.blogger.com/_CwyoX9b1Q0U/RmnkrkchFeI/AAAAAAAAAAU/_75lsZPyT8w/s320/taxii.bmp" border="0" /></a><br /><div>Friday night nearly midnight and im sitting in front of my laptop eating curry when I should be at work, I have been at work since 8 this morning so I dont feel to guilty. I finished work about 10.30 and went and got a take away curry I asked for a mild one and when I got home and started eating it, well Ghandi's revenge or what that was the hottest curry ive ever had. Anyway I did eat it but I will regret it. I am now munching on poppudoms onion salad and chutney and a glass of wine my last before I start TX. </div><br /><div>Before I carry on I would like to say hi to my cousin Darren he has been looking at my blog ive been told. We have not seen eachother for a long time and he has been very unwell hiself recently, I hope your ok now mate and make a full recovery. Daz contact me through my blog if you want a chat mate.</div><br /><div></div><br /><div>Two days to go before I start the TX *&%£ing hell do I really want to do this?</div><br /><div>can any one recommend the best place to inject I dont really fancy the stomach so it will have to be the leg I suppose! Also what is the best angle to go in from? My nurse says 90 degrees but the instructions say 45. </div><br /><div>I off now ill try and post sunday because I am working all day tomorrow being a cab driver saturday is my busiest day, and ive got football in the morning.</div><br /><div>see ya :-)</div><br /><div></div>stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com2tag:blogger.com,1999:blog-11446998.post-31148920166367482022007-06-07T10:59:00.000+14:002007-06-07T11:12:34.020+14:00PICKED UP MY TREATMENT<a href="http://bp0.blogger.com/_CwyoX9b1Q0U/RmchFkchFdI/AAAAAAAAAAM/nty7SOgD23E/s1600-h/tx.JPG"><img id="BLOGGER_PHOTO_ID_5073059884822500818" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://bp0.blogger.com/_CwyoX9b1Q0U/RmchFkchFdI/AAAAAAAAAAM/nty7SOgD23E/s320/tx.JPG" border="0" /></a> As you can see I picked up my TX today off Doreen my nurse I am due to start monday night with my first pills and jab. To be honest I am very worried about the sides but I gotta get this shit out of me. I have been told to do the injection of an evening so as to sleep through the sides! If anyone has any advice I would love to hear from you.<br /><div> </div>stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com3tag:blogger.com,1999:blog-11446998.post-41795919828813335932007-06-02T12:39:00.000+14:002007-06-02T12:50:38.981+14:00IM BACK AND GOING ON TREATMENTHi all its been a very long time there are loads of new hep c bloggers out there and still some of the old. I will make this quick cos im tired and want to go to bed. I have Hep C genotype 1a and was given this little present from the NHS because I suffer from Haemophilia, I start the treatment on 11/06/2007 I will pick up my meds from my nurse on the wednesday, to help me through the tx I will try and post everyday for 48 weeks. I would welcome all comments and advice from anyone who wants to give it really. I am off now and I will post on the 11th. See ya :-)stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com2tag:blogger.com,1999:blog-11446998.post-1142012565396156522006-03-11T07:34:00.000+14:002006-03-11T07:46:10.216+14:00THE SUN NEWSPAPERHI BLOODY HELL IT SEEMS LIKE AGES SINCE IVE POSTED, IN MY DEFENCE I HAVE BEEN BUSY. I AM STILL CAMPAIGNING ABOUT HEP C AND I HAD AN ARTICLE IN TODAYS SUN NEWSPAPER HAVE A LOOK AT THIS! IT IS UNDER AN ASSUMED NAME:<br /><br />US blood isdeath sentence<br />Horror ... scandal of US blood<br />EXCLUSIVEby EMMA MORTON<br />A MAN who got deadly Hepatitis C from a blood transfusion when he was SEVEN has spoken of his horrific ordeal for the first time.<br />Simon Brown, 34, was only told he had the killer liver virus in 1995 — even though he tested positive for it in 1984.<br />He now has progressed liver disease and describes his immune system as “shot”.<br />He cannot get a mortgage or insurance because of his illness.<br />Simon got the disease in 1978 — when he was given “dirty” American blood during an injection for his haemophilia, at Royal London Hospital in Whitechapel.<br />On Monday The Sun revealed the NHS was urged NOT to buy US blood from 1975, because American drug firms were paying prisoners, drug addicts and prostitutes to donate.<br />Simon, of King’s Lynn, Norfolk, said yesterday: “I had no idea I was being given infected blood. The NHS knew of the dangers — but I now have progressed liver disease.<br />“I don’t know what being healthy is because of this.”<br />He has written to Prime Minister Tony Blair and Health Secretary Patricia Hewitt and is demanding a probe.<br />Simon said: “I want a public inquiry into how I and thousands of others were given a death sentence. It’s like mass murder.”<br /><br />WELL WHAT DO YOU THINK THEN?<br /><br />ALL JOKING ASIDE THE REPORTER WHO WROTE THIS IS ON OUR SIDE AND SEEMS REALLY NICE AND SYMPATHETIC, SHE IS GOING TO RUN A SERIES OF ARTICLES ON HEP C, SO THANK YOU VERY MUCH TO EMMA MORTON FROM THE SUN NEWSPAPER.<br /><br />ALL THE BEST BLOGGERS<br />SPEAK SOON<br />STEVE (SIMON)stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com2tag:blogger.com,1999:blog-11446998.post-1135629728361222702005-12-27T10:33:00.000+14:002005-12-27T10:42:08.386+14:00COMMENTS<span style="font-size:100%;">WHO KEEPS PUTTING THESE COMMENTS ON MY BLOG, PLEASE KEEP OFF MY BLOG UNLESS YOU WANT TO WRITE ABOUT HEP C OR I KNOW YOU (THANKS).</span><br /><span style="font-size:100%;"></span><br /><span style="font-size:100%;">HI ALL BACK AGAIN, SORRY I HAVE BEEN AWAY BUT I HAVE BEEN VERY BUSY WITH WORK, GOOD NEWS I HAVE QUIT SMOKING, BAD NEWS I AM STILL A FAT GIT.</span><br /><span style="font-size:100%;"></span><br /><span style="font-size:100%;">TX,</span><br /><span style="font-size:100%;">I AM STILL NOT SURE ABOUT STARTING TX IN THE NEW YEAR, I AM NOT READY AND MY HOUSING SITUATION IS A BIT STRESSED THERE ARE 5 OF US LIVING IN A 2 BED HOUSE AND I WANT MY TX TO BE STRESS FREE. WE ARE WAITING FOR THE COUNCIL TO MOVE US, ha ha.</span><br /><span style="font-size:100%;">I HOPE YOU ARE ALL WELL AND HAVE HAD A GOOD CHRISTMAS.</span><br /><span style="font-size:100%;">SPEAK SOON</span><br /><span style="font-size:100%;">STEVE</span><br /><span style="font-size:100%;"></span><br /><span style="font-size:100%;">SMOKE FREE IT'S GREAT.</span>stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com6tag:blogger.com,1999:blog-11446998.post-1121191748077009752005-07-12T19:01:00.000+14:002005-07-13T08:09:08.086+14:00DOCTORS APPOINTMENTWELL WHAT CAN I SAY, MY DOC WANTS ME TO START TREATMENT ASAP (GREAT), WE HAD A LONG CONVERSATION ABOUT THE TX AND MY GENERAL OVERALL FITNESS AND HOW I WOULD COPE WITH THE TX. BASICLLY I AM GOING TO START TX AT THE BEGINNING JANUARY 2006, THIS WILL GIVE ME 5 MONTHS TO LOSE SOME WEIGHT AND GIVE UP SMOKING.<br />HOPEFULLY BY THIS TIME I WOULD HAVE PREPARED MYSELF BOTH PHYSICALLY AND MENTALLY FOR MY JOURNEY TO BECOME FREE FROM HEP C.<br />THE NURSE IS GOING TO RING ME NEXT WEEK TO START SORTING THINGS OUT.<br />I BETTER GO NOW BECAUSE MY SON NEEDS SOME ATTENTION.<br />SEE YA!stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com7tag:blogger.com,1999:blog-11446998.post-1121025201804257452005-07-10T20:36:00.000+14:002005-07-12T09:13:55.430+14:00DOCTORS APPT FAST APPROACHINGHI ALL ITS BEEN AGES SINCE I POSTED, I HAVE MY OWN REASONS FOR NOT DOING SO AS I HAVE ALREADY TOLD YOU ABOUT, ANYWAY I HAVE BEEN REALLY BUSY AT WORK AND SETTING UP MY COMPANY. I HAVE BEEN READING OTHER BLOGS BUT I HAVE NOT REALLY WANTED TO COMMENT (THAT AWKWARD FEELING AGAIN).<br />GOT MY APPOINTMENT WITH CONSULTANT ON TUESDAY AFTERNOON AT 4 TO DISCUSS TX, I AM REALLY LOOKING FORWARD TO THAT (NOT). I WILL POST TUESDAY NIGHT TO LET YOU KNOW WHAT HAPPENS.<br />ONE LAST THING WELL DONE TO JONATHAN FOR COMPLETING HIS TREATMENT.<br />HEP C FREE (MY DREAM)stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com3tag:blogger.com,1999:blog-11446998.post-1117297503705231842005-05-28T17:23:00.000+14:002005-05-29T06:25:03.710+14:00BACK AGAINHI ALL SORRY I HAVE NOT POSTED FOR AGES I HAVE HAD LOADS GOING ON IN MY LIFE, I HAVE SET UP A NEW BUSINESS WITH MY NEIGHBOR. FOR THE LAST YEAR WE HAVE HAD A HOBBY OF BUYING OLD CARS CLEANING THEM UP AND SELLING THEM, WELL OUR HOBBY HAS TAKEN OFF AND WE ARE NOW STARTING TO MAKE SOME GOOD MONEY OUT OF IT ALTHOUGH WE ARE STILL DOING OUR NORMAL JOBS.<br /><br />ONE OF THE REASONS I HAVE NOT POSTED FOR A WHILE IS THAT I FEEL A BIT AWKWARD COMMENTING ON OTHER BLOGS, YOU ARE ALL GOING THROUGH TREATMENT AND ALL I CAN DO IS GUESS WHAT ITS LIKE, TO ME THAT'S NOT FAIR ON YOU. I WOULD NOT WANT TO UPSET ANYONE ( I THINK I HAVE ALREADY ) SO I THINK ITS BEST FOR ME TO KEEP QUIET UNTIL I START TX. I HAVE AN APPOINTMENT WITH MY CONSULTANT ON 12 JULY TO DISCUSS TREATMENT.<br />ALL THE VERY BEST TO EVERYONE,<br />I WISH US ALL FREE FROM THIS VIRUS.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com8tag:blogger.com,1999:blog-11446998.post-1115473516883483792005-05-07T14:40:00.000+14:002005-05-08T03:45:16.943+14:00SUPPORT GROUPSI HAVE READING OTHER BLOGS AND SURFING OTHER HEP C SITES, ONE THING I HAVE NOTICED IS SUPPORT FOR HEPPERS IS CRAP, WHY ? I DON'T KNOW !<br />HOW AM I GOING TO DO SOMETHING ABOUT IT ? I DON'T KNOW !<br />AM I GOING TO TRY AND DO SOMETHING ABOUT IT ? YES !<br />( WELL TRY ANYWAY ) I STARTED THINKING ABOUT THIS AFTER READING BALOM'S BLOG, I CANT IMAGINE HOW THIS POOR LAD FEELS. I E-MAILED THE HAEMOPHILIA SOCIETY FOR ADVICE THIS IS A COPY OF THERE REPLY<br /><br /><br />Dear StephenThanks for your email. There are a number of organisations that provide support and information for people affected by hepatitis C and may be able to provide support for children affected or at least point you in the direction of somebody who does.The Hepatitis C Trust is probably the best organisation to contact, you can call their helpline on 0870 200 1 200, their helpline is open from 12 - 6pm.Alternatively you could try the Hepatitis C Project on 01395 271601, sometimes this number is answered by an answer machine but everybody who leaves a message will be called back.We also have a booklet for young people on living with hep c and a booklet for carers/ parents of a young person with hep c which I could send you if you let me know your address.I hope this helps.Kind regardsAnnaAnna Hinchliffe-WoodInformation & Support Development WorkerThe Haemophilia SocietyFirst FloorPetersham House57a Hatton GardenLondonEC1N 8JGDDI: 020 7269 0686Admin: 020 7381 1020Helpline: 0800 018 6068 (10am - 4pm)Fax: 020 7405 4824www.haemophilia.org.uk<br /><br />I HOPE THE NUMBERS ABOVE ARE SOME HELP, IF ONLY ONE PERSON RINGS AND GETS SOME HELP IT MAKES IT WORTHWHILE.<br /><br /><br /><br /><br /><p></p><p></p>stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com6tag:blogger.com,1999:blog-11446998.post-1115144691770545622005-05-03T19:19:00.000+14:002005-05-04T08:24:51.770+14:00NOT POSTED FOR A WHILEHI, SORRY I HAVE NOT POSTED FOR A WHILE BEEN BUSY AT WORK AND WITH FAMILY. I SENT A COMPLAINT TO THE HOSPITAL, LUST AWAITING A REPLY, I AM ALSO STILL WAITING FOR AN APPOINTMENT TO SEE MY CONSULTANT TO DISCUSS MY BIOPSY. TALKING OF THE BIOPSY ALL MY PAIN HAS NOW GONE (THANK GOD).<br />I NOTICED RON HAS SET UP A HEPATITIS C FORUM, I THINK IT IS A GREAT IDEA, WELL DONE RON. I HAVE PUT A LINK TO THE FORUM ON THE BOTTOM RIGHT OF THIS PAGE.<br />I TRIED POSTING LAST NIGHT BUT BLOGGER WAS NOT WORKING. DOES ANYONE ELSE HAVE PROBLEMS POSTING?stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com4tag:blogger.com,1999:blog-11446998.post-1114546123824451202005-04-26T21:00:00.000+14:002005-04-27T10:08:43.826+14:00TURNED AWAY FROM HOSPITALYEP THAT'S RIGHT I WAS TURNED AWAY.<br />I HAVE BEEN EXPERIENCING SHARP PAINS IN MY LIVER TODAY, SO I WENT TO A&E. AS YOU KNOW I SUFFER FROM HAEMOPHILIA WHICH MEANS MY BLOOD DOES NOT CLOT VERY WELL, I TOLD THE TRIARGE NURSE ALL ABOUT MY HAEMOPHILIA AND MY HEPATITIS C AND MY BIOPSY AND THAT I FEARED I WAS BLEEDING INTURNALLY. HE ASKED MY WHY I HAD NOT GONE TO SEE MY GP, AND ALL THE A&E DOCTOR WOULD DO IS REFER ME TO SEE THE LIVER CONSULTANT AND MY GP COULD DO THAT QUICKER. I DID NOT EVEN SEE A DOCTOR WHILE I WAS THERE, WAS NOT EXAMINED NOTHING. I COULD NOT BELIEVE IT, I AM LIVID. I WILL BE MAKING AN OFFICIAL COMPLAINT AND PURSUING A CLINICAL NEGLIGENCE CLAIM, BUT FIRSTLY I WILL BE PHONING MY CONSULTANT HEAMOTOLOGIST FIRST THING IN THE MORNING, TO HOPEFULLY GET SOME PROPER MEDICAL ADVICE.stevehttp://www.blogger.com/profile/10459256638306371973noreply@blogger.com3