I HAVE READING OTHER BLOGS AND SURFING OTHER HEP C SITES, ONE THING I HAVE NOTICED IS SUPPORT FOR HEPPERS IS CRAP, WHY ? I DON'T KNOW !
HOW AM I GOING TO DO SOMETHING ABOUT IT ? I DON'T KNOW !
AM I GOING TO TRY AND DO SOMETHING ABOUT IT ? YES !
( WELL TRY ANYWAY ) I STARTED THINKING ABOUT THIS AFTER READING BALOM'S BLOG, I CANT IMAGINE HOW THIS POOR LAD FEELS. I E-MAILED THE HAEMOPHILIA SOCIETY FOR ADVICE THIS IS A COPY OF THERE REPLY
Dear StephenThanks for your email. There are a number of organisations that provide support and information for people affected by hepatitis C and may be able to provide support for children affected or at least point you in the direction of somebody who does.The Hepatitis C Trust is probably the best organisation to contact, you can call their helpline on 0870 200 1 200, their helpline is open from 12 - 6pm.Alternatively you could try the Hepatitis C Project on 01395 271601, sometimes this number is answered by an answer machine but everybody who leaves a message will be called back.We also have a booklet for young people on living with hep c and a booklet for carers/ parents of a young person with hep c which I could send you if you let me know your address.I hope this helps.Kind regardsAnnaAnna Hinchliffe-WoodInformation & Support Development WorkerThe Haemophilia SocietyFirst FloorPetersham House57a Hatton GardenLondonEC1N 8JGDDI: 020 7269 0686Admin: 020 7381 1020Helpline: 0800 018 6068 (10am - 4pm)Fax: 020 7405 4824www.haemophilia.org.uk
I HOPE THE NUMBERS ABOVE ARE SOME HELP, IF ONLY ONE PERSON RINGS AND GETS SOME HELP IT MAKES IT WORTHWHILE.
6 comments:
Steve,
you mentioned support groups. Norfolk has quite an active group, I have to admit I haven't been to it, but I have met a couple of people who go and they seem okay. How do you fancy going along to the May meeting.
Jonathan
HI JONATHAN,
YEAH I DONT MIND GOING TO THE MAY MEETING, SHALL I CONTACT THEM TO FIND OUT WHEN AND WHERE? OR DO YOU WANT TO?
GOT OVER THE JET LAG YET?
STEVE
Steve,
They put the meeting dates up on the web site, seems that there won't be one in May.
I think you have to travel through more timezones to get jet lag. There was 2 hours difference between Egypt and here so not that difficult to readjust. Plus Paul and I are essentially lazy on holiday and tend to sleep alot.
Jonathan
Hey Steve,
Havnt heard from you for a while. Are you OK matey?
Come back
Wendy
steve I created a site that address a illness, but not sure it is exactly like SUPPORT GROUPS,but maybe you will approve of it's content..The real life effects of Diffuse Malignant Peritoneal Mesothelioma have become so high in cost to treat, that it just adds to the stress of the illness and ones health to fight the illness.
Take peritonea-mesothelioma Cancers.peritonea-mesothelioma cancers are the cancers that spread in the mesothelium tissues. Mesothelium in general is the name of tissue that forms lining of different body organs such as heart, lungs, abdomen and reproductive organs. The lining around abdominal organs is known as peritoneal membrane. Lining around lungs is called pleural membrane while the lining around heart is called pericardium.read more at Diffuse Malignant Peritoneal Mesothelioma
I was diagnosed as HEPATITIS B carrier in 2013 with fibrosis of the
liver already present. I started on antiviral medications which
reduced the viral load initially. After a couple of years the virus
became resistant. I started on HEPATITIS B Herbal treatment from
ULTIMATE LIFE CLINIC (www.ultimatelifeclinic.com) in March, 2020. Their
treatment totally reversed the virus. I did another blood test after
the 6 months long treatment and tested negative to the virus. Amazing
treatment! This treatment is a breakthrough for all HBV carriers..
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