Wednesday, March 30, 2005

GOT MY DATES AT LAST

HI, SORRY I HAVE NOT POSTED FOR A COUPLE OF DAYS, MY KIDS & LISA (THE BETTER HALF) HAVE HAD THE FLU BADLY, I THINK THEY ARE GETTING OVER IT NOW. STRANGELY I DID NOT GET IT, THE FLU VIRUS PROBABLY GOT INTO ME FOUND THE HEP C AND DONE A SHARP EXIT, CANT SAY I BLAME IT I WOULDN'T WANT TO BE INSIDE ME EITHER. GOT A PHONE CALL OFF THE HOSPITAL TODAY I GO IN ON THE 5th HAVE THE BIOPSY ON THE 6th AND THEY WANT ME TO STAY IN 3 DAYS AFTER THE BIOPSY.
ON ANOTHER NOTE I HAVE BEEN READING JONATHAN'S BLOG THE LAST FEW DAYS, I CAN ONLY SAY THAT I REALLY FEEL FOR YOU JONATHAN, I DON'T KNOW WHAT YOU ARE GOING THROUGH, BUT YOU SOUND AS THOUGH YOU NEED SOMEONE TO TALK TO. IF YOU ARE READING THIS AND WANT A CHAT, E-MAIL ME OR GIVE ME A RING.
NOBODY IS JUDGING YOU WE ARE ALL SUPPORTING YOU.

Sunday, March 27, 2005

MY CAMPAIGN WEBSITE

HI FOR ALL OF YOU THAT ARE INTERESTED ABOUT CAMPAIGNING PLEASE VISIT MY OTHER SITE. http://hometown.aol.co.uk/bartramstv/myhomepage/refpage.html
I HAVE HAD TO CLOSE THIS SITE DOWN, SOME PEOPLE THOUGHT I WAS GIVING AWAY TO MUCH EVIDENCE. SORRY.

EASTER

HI ALL, MY DAUGHTER READ MY BLOG TODAY FOR THE FIRST TIME AND WANTED TO SAY A FEW WORDS. IT HAS BEEN A SAD DAY FOR HER TODAY AS HER DOG "HONEY" PASSED AWAY THIS MORNING, THE DOG HAS BEEN WITH HER SINCE SHE WAS BORN THEY WERE VERY CLOSE. SORRY I HAVE NOT POSTED FOR A COUPLE OF DAYS, I HAVE BEEN VERY BUSY. I STILL HAVE NOT GOT ANY FURTHER WITH THE HOSPITAL ABOUT THE DATES THEY WANT ME.
I GOT AN E-MAIL FROM ANOTHER HAEMOPHILIAC FRIDAY NIGHT, HE IS IN THE SAME SITUATION AS ME HE HAS SEVERE HAEMOPHILIA AND HAS NOT HAD A BIOPSY. HE WAS ASKING ME ABOUT HOW TO TELL PEOPLE AND "COMING OUT", I TOLD HIM NOT TO BE ASHAMED AS IT IS NOT HIS FAULT, BUT I DO KNOW HOW HE FEELS ITS NOT EASY. WHAT I WILL SAY TO HIM IF HE IS READING THIS, IS THAT THIS BLOG HAS HELPED ME NO END, IT GIVE YOU A CHANCE TO SAY WHAT YOU ARE FEELING AND TO TELL PEOPLE THAT YOU HAVE HEP C, WITHOUT FACING ANYBODY. THE BLOG ALSO HELPS BECAUSE YOU DON'T FEEL SO ISOLATED.
ANYWAY I AM OFF NOW, HAPPY EASTER ALL.

A MESSAGE FROM MY DAUGHTER, AGED 10

MY DAD IS GOING THROUGH WHAT YOU ARE GOING THROUGH.I THINK EVERYONE WILL FIGHT THIS THING AND GET BETTER!MY DAD IS A TAXI DRIVER AND HE MIGHT HAVE TO BE OF WORK FOR A WHILE! WHEN HE GOES INTO HOSPITEL. HE WILL STILL BE IN ON MY BIRTHDAY!WELL,I HOPE EVERYONE WILL FIGHT HEPATITIS C!
MILLONS OF PEOPLE ARE GOING THROUGH THIS AND EVERYONE NEEDS SUPPORT FROM FRIENDS AND FAMILY.

Tuesday, March 22, 2005

TITLE CHANGE

JUST A QUICK ONE, I ORIGINALLY CALLED MY BLOG THE SILENT KILLER, OVER THE LAST FEW WEEKS I HAVE BEEN READING OTHER HEP C BLOGS AND I CAN SEE LIGHT AT THE END OF THE TUNNEL. I HAVE NOW CHANGED MY BLOG TITLE TO BEATING HEPATITIS C, BECAUSE THAT'S WHAT I AM GOING TO DO, BEAT IT.

I GIVE UP WITH HOSPITALS

I PHONED THE HOSPITAL TODAY AS I SAID I WOULD, AND THEY STILL HAVE NOT SORTED OUT MY TREATMENT DATES, I WILL TRY AGAIN TOMORROW. I GOT TO GO NOW, NEED TO BE UP EARLY FOR WORK. SEE YA TOMORROW HOPEFULLY WITH SOME POSITIVE HOSPITAL NEWS.

Monday, March 21, 2005

BLOODY HOSPITALS

I WAITED ALL DAY TODAY FOR THE HOSPITAL TO PHONE ME, TO CONFIRM WHEN THEY ARE GOING ADMIT ME FOR MY BIOPSY, GUESS WHAT, YEAH YOU GOT IT, THEY DID NOT PHONE. I SHOULD HAVE CALLED THEM REALLY, BUT TO BE TRUTHFUL I WAS A BIT SCARED, WHAT A WIMP I HEAR YOU SAY. I WILL RING TOMORROW, I PROMISE.

Sunday, March 20, 2005

SUPPORT FOR EVERYONE

I HAVE JUST BEEN READING RONS BLOG AND THE "COMMENTS", PARTICULARLY COLLETE'S COMMENTS.
AS YOU KNOW I SUFFER FROM HAEMOPHILIA AND WAS GIVEN HEP C WHEN I WAS A KID, WHEN I STARTED DIGGING FOR ANSWERS ALL I WAS INTERESTED IN WAS "HAEMOPHILIA" HOW NARROW MINDED I WAS. WE ALL GOT OUR INFECTION SOMEWHERE. THIS VIRUS DOES NOT CARE ABOUT CLASS, BACKGROUND, BLACK OR WHITE, RICH OR POOR, IF YOUR ON DRUGS, OR IF YOU HAVE HAEMOPHILIA.
I HAVE NOTHING AGAINST DRUG USERS, I FEEL SORRY FOR THEM, DON'T BLAME THEM BLAME THE BASTARDS THAT GOT THEM ON THE DRUGS THE DEALERS.
I AM STILL CAMPAIGNING BUT NOW I AM DOING IT FOR EVERYONE.
ONE COMMENT COLLETE MADE ON RONS BLOG, "THAT HAEMOPHILIAC'S GOT THIS VIRUS UNINVITED", WELL I DON'T KNOW ANYBODY THAT BLOODY INVITED IT, BUT THE FACT IS WE HAVE GOT IT. SO LETS SUPPORT EACH OTHER AND BEAT IT.

A MESSAGE TO COLLETE.
I KNOW HOW CAMPAIGNING CAN GET UNDER YOUR SKIN, EVERYWHERE YOU GO FOR ANSWERS YOU GET BLANKED. I HAVE HAD MEETINGS WITH MPs WRITTEN TO THE PM, JOHN REID etc etc. I FULLY SUPPORT YOUR CAUSE AND THANK YOU FOR IT. BUT PLEASE REMEMBER HAEMOPLILIAC'S ARE NOT THE ONLY ONES AFFECTED, AND I AGREE WITH RON HIS SITE IS NOT THE PLACE TO CAMPAIGN, IT WOULD BE GOOD IF YOUR GOT YOUR OWN BLOG SITE (ITS FREE) AS I WOULD LIKE TO SEE SOME OF YOUR EVIDENCE.

BIOPSY DATE

HI ALL, I HOPE MY BLOG IS WORKING NOW I REALLY MESSED IT UP.
I GOT A PHONE CALL OFF THE NORFOLK & NORWICH HOSPITAL ON THURSDAY, TELLING ME THAT MY BIOPSY WILL BE ON THE 6th APRIL, WHEN I ASKED THEM ABOUT MY TREATMENT FOR MY BLEEDING DISORDER, THEY TOLD ME THAT THEY HAD NOT OGANISED ANY TREATMENT FOR ME (BLESS THEM), I TOLD THEM THAT I WAS NOT HAPPY WITH THEM AS POLITELY AS I COULD. THEY ARE GOING TO RING ME TOMORROW AND CONFIRM TREATMENT AND DATES.
CAN ANY ONE TELL ME HOW TO ADD LINKS TO MY BLOG? I AM NOT VERY COMPUTER LITERATE, AS YOU MAY HAVE ALREADY GUESSED.

Tuesday, March 15, 2005

I MESSED UP

HI I DELETED MY BLOG BY ACCIDENT I COPY AND PASTED WHAT WAS ON THERE. NOW I WILL TRY AGAIN
Friday, March 11, 2005

TELLING PEOPLE
HOW DO YOU TELL PEOPLE ?I WORK IN AN ENVIRONMENT THAT'S VERY IGNORANT ABOUT HEP C, NOT THERE FAULT REALLY ITS NOT THE SOUGHT OF THING YOU TALK ABOUT IN GENERAL CONVERSATION. I WORK WITH PROBABLY 200+ PEOPLE ONLY ABOUT THREE OF THEM I CLASS AS FRIENDS. IT CAME OUT TODAY ABOUT MY HEP C BY COMPLETE ACCIDENT, I WAS ACTUALLY EMBARRASSED ABOUT IT, I FOUND MYSELF PLAYING IT DOWN. I WAS LOOKED AT LIKE I WAS A WALKING DISEASE AND THEY MIGHT CATCH SOMETHING!!!!!!!!!I JUST MADE MY EXCUSES AND LEFT.WHY SHOULD I FEEL LIKE THIS ?HOW CAN YOU TELL PEOPLE LIKE THIS ?ARRRRRRGHHHH
posted by STEVE at 11.3.05 0 comments
Thursday, March 10, 2005

FEELING POSITIVE
HI, IM FEELING MORE POSITIVE TODAY, I SPOKE TO JONATHAN VIA E-MAIL LAST NIGHT, HE PUT MY MIND AT REST. I ALSO HAD MY FIRST "COMMENTS" ON MY BLOG THAT WAS GOOD.TALKED TO MY OLD CONSULTANT BRIAN COLVIN IN LONDON TODAY, THAT WAS NICE HE TREATED ME WHEN I WAS A KID NOT SEEN HIM FOR ABOUT TWENTY YEARS ITS IRONIC REALLY HE IS A VERY GOOD FAMILY FRIEND BUT HE IS PROBABLY THE ONE WHO GAVE ME THIS VIRUS. NO HARD FEELINGS BRIAN.I SAW JONATHAN TODAY VERY BRIEFLY, HE DOES LOOK WELL CONSIDERING THE TREATMENT HE IS ON. WELL DONE MATE KEEP IT UP.I GOT A PHONE CALL TONIGHT FROM A FELLOW HAEMOPHILIAC AND HEP C SUFFERER MIKE COLYER. HE HAS DONE A VAST AMOUNT OF CAMPAIGNING FOR PEOPLE WITH HEP C, THE UK GOVENMENT MUST BE WELL PEEEED OFF WITH HIM, HE JUST WILL NOT LET THEM REST. GOOD FOR YOU MIKE KEEP IT UP.
posted by STEVE at 10.3.05 0 comments

SUPPORTING EVIDENCE
LAST YEAR I RECEIVED A DOCUMENT FROM A HEP C SUFFERER IN WALES, THIS DOCUMENT IS A COPY OF AN "OFFICIAL GOVERNMENT REPORT", IT SHOWS THAT THE BLOOD WE WERE GIVEN WAS KNOWN TO BE CONTAMINATED WITH A TYPE OF NON A-NON B HEPATITIS. IT DOES GO ON ABOUT HAEMOPHILIA A LOT AND I AM NOT BLIND TO THE FACT THAT YOU DON'T HAVE TO HAVE HAEMOPHILIA TO HAVE HEP C.THIS DOCUMENT CONDEMNS BPL LABORATORIES IN LONDON, THEY DEAL WITH MOST BLOOD PRODUCTS IN THE UK.I HAVE SENT THIS DOCUMENT TO TONY BLAIR PM AND JOHN REID SECRETARY OF STATE FOR HEALTH AND ASKED QUESTIONS. GUESS WHAT, THEY DID NOT ANSWER ME.IF ANYONE WANTS A COPY PLEASE E-MAIL ME AND I WILL ATTACH IT TO E-MAIL AND SEND IT BACK TO YOU.
posted by STEVE at 10.3.05 0 comments
Wednesday, March 09, 2005

BIOPSY
I WENT TO HOSPITAL TODAY, THAT WAS FUN (NOT). I HAVE GOT TO HAVE BIOPSY IN THE NEXT 2-3 WEEKS, I AM REALLY LOOKING FOWARD TO THAT, AND THEN START TREATMENT, WONDERFULL WHAT LUCKY PEOPLE WE ARE.I DONT KNOW IF ANYBODY IS READING THIS BUT IT GETTING IT OFF MY CHEST.IM GOING NOW BECAUSE IM PISSED OFF AND SHIT SCARED. SEE YA!!!!!!!!!!!!!!!!!!
posted by STEVE at 9.3.05 3 comments
Monday, March 07, 2005

NEW FRIENDS
I MET A GUY TODAY IN THE SAME SITUATION TO ME, ALTHOUGH WE ARE FROM TOTALLY DIFFERENT BACKGROUNDS, I FELT WE HAD A LOT IN COMMON, HE GAVE ME SOME VERY GOOD ADVICE ABOUT CONFRONTING HEP C AND NOT RUNNING AWAY. I WAS SCARED BY HOW MUCH I DID NOT KNOW ABOUT THIS VIRUS, I HAVE SPENT A LONG TIME SAYING WHY ME ! AND NOT ENOUGH TIME FINDING OUT ABOUT WHAT IS HAPPENING INSIDE ME. MY DOCTORS COULD BE MORE FORTHCOMING WITH INFORMATION BUT THAT'S ANOTHER STORY.I WILL NOT NAME THE GUY I MET TODAY WITHOUT ASKING HIM, BUT I FELT I HAD KNOWN HIM ALL MY LIFE, I SUPPOSE WE WENT THROUGH THE SAME SOUGHT OF THINGS IN OUR SEPARATE LIVES, WHAT I AM TRYING TO SAY IS THANKS TO "HEP C" I HAVE MADE A NEW FRIEND WHO WAS WILLING TO OPEN UP HIS PRIVATE LIFE TO A COMPLETE STRANGER. I HOPE THIS FRIENDSHIP DEVELOPS.THANKS AGAIN. YOU KNOW WHO YOU ARE.
posted by STEVE at 7.3.05 0 comments

STARTING OUT
HI I HAVE CREATED THIS BLOG SO I CAN SHARE INFORMATION ON HEPATITIS C WITH YOU, I HAVE HAEMOPHILIA AND WAS INFECTED WITH HEP C THROUGH CONTAMINATED NHS BLOOD PRODUCTS. I AM NOT CURRENTLY ON TREATMENT MAINLY BECAUSE I AM SCARED TO, ITS NOT NICE.I FELT I HAD TO PUBLISH THIS SITE, AS I HAVE READ OTHERS "BLOG SITES" AND I ADMIRE THEM FOR SPEAKING OUT, SO THIS IS REALLY TO SUPPORT THEM.I HAVE HAD MEETINGS WITH CHARLES CLARKE THE NEW HOME SECRETARY, TO TRY AND PUSH FOR A PUBLIC ENQUIRY, BUT NOT HAD A LOT OF JOY. I BELIEVE THE UK GOVENMENT ARE RESPONSABLE FOR THIS MASS POISIONING.I WILL KEEP YOU INFORMED OF ANY PROGRESS.IF ANYONE READING THIS WHO HAS NOT ALREADY BEEN IN CONTACT WITH THE SKIPTON FUND PLEASE CLICK ON LINK.http://www.theskiptonfund.org
posted by STEVE at 7.3.05 0 comments
Sunday, March 06, 2005

THE SKPTON FUND
THE ABOVE LINK IS WRONG THE CORRECT LINK FOR THE SKIPTON FUND IShttp://www.skiptonfund.org
posted by STEVE at 6.3.05 0 comments