WHO KEEPS PUTTING THESE COMMENTS ON MY BLOG, PLEASE KEEP OFF MY BLOG UNLESS YOU WANT TO WRITE ABOUT HEP C OR I KNOW YOU (THANKS).
HI ALL BACK AGAIN, SORRY I HAVE BEEN AWAY BUT I HAVE BEEN VERY BUSY WITH WORK, GOOD NEWS I HAVE QUIT SMOKING, BAD NEWS I AM STILL A FAT GIT.
TX,
I AM STILL NOT SURE ABOUT STARTING TX IN THE NEW YEAR, I AM NOT READY AND MY HOUSING SITUATION IS A BIT STRESSED THERE ARE 5 OF US LIVING IN A 2 BED HOUSE AND I WANT MY TX TO BE STRESS FREE. WE ARE WAITING FOR THE COUNCIL TO MOVE US, ha ha.
I HOPE YOU ARE ALL WELL AND HAVE HAD A GOOD CHRISTMAS.
SPEAK SOON
STEVE
SMOKE FREE IT'S GREAT.
Tuesday, December 27, 2005
Tuesday, July 12, 2005
DOCTORS APPOINTMENT
WELL WHAT CAN I SAY, MY DOC WANTS ME TO START TREATMENT ASAP (GREAT), WE HAD A LONG CONVERSATION ABOUT THE TX AND MY GENERAL OVERALL FITNESS AND HOW I WOULD COPE WITH THE TX. BASICLLY I AM GOING TO START TX AT THE BEGINNING JANUARY 2006, THIS WILL GIVE ME 5 MONTHS TO LOSE SOME WEIGHT AND GIVE UP SMOKING.
HOPEFULLY BY THIS TIME I WOULD HAVE PREPARED MYSELF BOTH PHYSICALLY AND MENTALLY FOR MY JOURNEY TO BECOME FREE FROM HEP C.
THE NURSE IS GOING TO RING ME NEXT WEEK TO START SORTING THINGS OUT.
I BETTER GO NOW BECAUSE MY SON NEEDS SOME ATTENTION.
SEE YA!
HOPEFULLY BY THIS TIME I WOULD HAVE PREPARED MYSELF BOTH PHYSICALLY AND MENTALLY FOR MY JOURNEY TO BECOME FREE FROM HEP C.
THE NURSE IS GOING TO RING ME NEXT WEEK TO START SORTING THINGS OUT.
I BETTER GO NOW BECAUSE MY SON NEEDS SOME ATTENTION.
SEE YA!
Sunday, July 10, 2005
DOCTORS APPT FAST APPROACHING
HI ALL ITS BEEN AGES SINCE I POSTED, I HAVE MY OWN REASONS FOR NOT DOING SO AS I HAVE ALREADY TOLD YOU ABOUT, ANYWAY I HAVE BEEN REALLY BUSY AT WORK AND SETTING UP MY COMPANY. I HAVE BEEN READING OTHER BLOGS BUT I HAVE NOT REALLY WANTED TO COMMENT (THAT AWKWARD FEELING AGAIN).
GOT MY APPOINTMENT WITH CONSULTANT ON TUESDAY AFTERNOON AT 4 TO DISCUSS TX, I AM REALLY LOOKING FORWARD TO THAT (NOT). I WILL POST TUESDAY NIGHT TO LET YOU KNOW WHAT HAPPENS.
ONE LAST THING WELL DONE TO JONATHAN FOR COMPLETING HIS TREATMENT.
HEP C FREE (MY DREAM)
GOT MY APPOINTMENT WITH CONSULTANT ON TUESDAY AFTERNOON AT 4 TO DISCUSS TX, I AM REALLY LOOKING FORWARD TO THAT (NOT). I WILL POST TUESDAY NIGHT TO LET YOU KNOW WHAT HAPPENS.
ONE LAST THING WELL DONE TO JONATHAN FOR COMPLETING HIS TREATMENT.
HEP C FREE (MY DREAM)
Saturday, May 28, 2005
BACK AGAIN
HI ALL SORRY I HAVE NOT POSTED FOR AGES I HAVE HAD LOADS GOING ON IN MY LIFE, I HAVE SET UP A NEW BUSINESS WITH MY NEIGHBOR. FOR THE LAST YEAR WE HAVE HAD A HOBBY OF BUYING OLD CARS CLEANING THEM UP AND SELLING THEM, WELL OUR HOBBY HAS TAKEN OFF AND WE ARE NOW STARTING TO MAKE SOME GOOD MONEY OUT OF IT ALTHOUGH WE ARE STILL DOING OUR NORMAL JOBS.
ONE OF THE REASONS I HAVE NOT POSTED FOR A WHILE IS THAT I FEEL A BIT AWKWARD COMMENTING ON OTHER BLOGS, YOU ARE ALL GOING THROUGH TREATMENT AND ALL I CAN DO IS GUESS WHAT ITS LIKE, TO ME THAT'S NOT FAIR ON YOU. I WOULD NOT WANT TO UPSET ANYONE ( I THINK I HAVE ALREADY ) SO I THINK ITS BEST FOR ME TO KEEP QUIET UNTIL I START TX. I HAVE AN APPOINTMENT WITH MY CONSULTANT ON 12 JULY TO DISCUSS TREATMENT.
ALL THE VERY BEST TO EVERYONE,
I WISH US ALL FREE FROM THIS VIRUS.
ONE OF THE REASONS I HAVE NOT POSTED FOR A WHILE IS THAT I FEEL A BIT AWKWARD COMMENTING ON OTHER BLOGS, YOU ARE ALL GOING THROUGH TREATMENT AND ALL I CAN DO IS GUESS WHAT ITS LIKE, TO ME THAT'S NOT FAIR ON YOU. I WOULD NOT WANT TO UPSET ANYONE ( I THINK I HAVE ALREADY ) SO I THINK ITS BEST FOR ME TO KEEP QUIET UNTIL I START TX. I HAVE AN APPOINTMENT WITH MY CONSULTANT ON 12 JULY TO DISCUSS TREATMENT.
ALL THE VERY BEST TO EVERYONE,
I WISH US ALL FREE FROM THIS VIRUS.
Saturday, May 07, 2005
SUPPORT GROUPS
I HAVE READING OTHER BLOGS AND SURFING OTHER HEP C SITES, ONE THING I HAVE NOTICED IS SUPPORT FOR HEPPERS IS CRAP, WHY ? I DON'T KNOW !
HOW AM I GOING TO DO SOMETHING ABOUT IT ? I DON'T KNOW !
AM I GOING TO TRY AND DO SOMETHING ABOUT IT ? YES !
( WELL TRY ANYWAY ) I STARTED THINKING ABOUT THIS AFTER READING BALOM'S BLOG, I CANT IMAGINE HOW THIS POOR LAD FEELS. I E-MAILED THE HAEMOPHILIA SOCIETY FOR ADVICE THIS IS A COPY OF THERE REPLY
Dear StephenThanks for your email. There are a number of organisations that provide support and information for people affected by hepatitis C and may be able to provide support for children affected or at least point you in the direction of somebody who does.The Hepatitis C Trust is probably the best organisation to contact, you can call their helpline on 0870 200 1 200, their helpline is open from 12 - 6pm.Alternatively you could try the Hepatitis C Project on 01395 271601, sometimes this number is answered by an answer machine but everybody who leaves a message will be called back.We also have a booklet for young people on living with hep c and a booklet for carers/ parents of a young person with hep c which I could send you if you let me know your address.I hope this helps.Kind regardsAnnaAnna Hinchliffe-WoodInformation & Support Development WorkerThe Haemophilia SocietyFirst FloorPetersham House57a Hatton GardenLondonEC1N 8JGDDI: 020 7269 0686Admin: 020 7381 1020Helpline: 0800 018 6068 (10am - 4pm)Fax: 020 7405 4824www.haemophilia.org.uk
I HOPE THE NUMBERS ABOVE ARE SOME HELP, IF ONLY ONE PERSON RINGS AND GETS SOME HELP IT MAKES IT WORTHWHILE.
HOW AM I GOING TO DO SOMETHING ABOUT IT ? I DON'T KNOW !
AM I GOING TO TRY AND DO SOMETHING ABOUT IT ? YES !
( WELL TRY ANYWAY ) I STARTED THINKING ABOUT THIS AFTER READING BALOM'S BLOG, I CANT IMAGINE HOW THIS POOR LAD FEELS. I E-MAILED THE HAEMOPHILIA SOCIETY FOR ADVICE THIS IS A COPY OF THERE REPLY
Dear StephenThanks for your email. There are a number of organisations that provide support and information for people affected by hepatitis C and may be able to provide support for children affected or at least point you in the direction of somebody who does.The Hepatitis C Trust is probably the best organisation to contact, you can call their helpline on 0870 200 1 200, their helpline is open from 12 - 6pm.Alternatively you could try the Hepatitis C Project on 01395 271601, sometimes this number is answered by an answer machine but everybody who leaves a message will be called back.We also have a booklet for young people on living with hep c and a booklet for carers/ parents of a young person with hep c which I could send you if you let me know your address.I hope this helps.Kind regardsAnnaAnna Hinchliffe-WoodInformation & Support Development WorkerThe Haemophilia SocietyFirst FloorPetersham House57a Hatton GardenLondonEC1N 8JGDDI: 020 7269 0686Admin: 020 7381 1020Helpline: 0800 018 6068 (10am - 4pm)Fax: 020 7405 4824www.haemophilia.org.uk
I HOPE THE NUMBERS ABOVE ARE SOME HELP, IF ONLY ONE PERSON RINGS AND GETS SOME HELP IT MAKES IT WORTHWHILE.
Tuesday, May 03, 2005
NOT POSTED FOR A WHILE
HI, SORRY I HAVE NOT POSTED FOR A WHILE BEEN BUSY AT WORK AND WITH FAMILY. I SENT A COMPLAINT TO THE HOSPITAL, LUST AWAITING A REPLY, I AM ALSO STILL WAITING FOR AN APPOINTMENT TO SEE MY CONSULTANT TO DISCUSS MY BIOPSY. TALKING OF THE BIOPSY ALL MY PAIN HAS NOW GONE (THANK GOD).
I NOTICED RON HAS SET UP A HEPATITIS C FORUM, I THINK IT IS A GREAT IDEA, WELL DONE RON. I HAVE PUT A LINK TO THE FORUM ON THE BOTTOM RIGHT OF THIS PAGE.
I TRIED POSTING LAST NIGHT BUT BLOGGER WAS NOT WORKING. DOES ANYONE ELSE HAVE PROBLEMS POSTING?
I NOTICED RON HAS SET UP A HEPATITIS C FORUM, I THINK IT IS A GREAT IDEA, WELL DONE RON. I HAVE PUT A LINK TO THE FORUM ON THE BOTTOM RIGHT OF THIS PAGE.
I TRIED POSTING LAST NIGHT BUT BLOGGER WAS NOT WORKING. DOES ANYONE ELSE HAVE PROBLEMS POSTING?
Tuesday, April 26, 2005
TURNED AWAY FROM HOSPITAL
YEP THAT'S RIGHT I WAS TURNED AWAY.
I HAVE BEEN EXPERIENCING SHARP PAINS IN MY LIVER TODAY, SO I WENT TO A&E. AS YOU KNOW I SUFFER FROM HAEMOPHILIA WHICH MEANS MY BLOOD DOES NOT CLOT VERY WELL, I TOLD THE TRIARGE NURSE ALL ABOUT MY HAEMOPHILIA AND MY HEPATITIS C AND MY BIOPSY AND THAT I FEARED I WAS BLEEDING INTURNALLY. HE ASKED MY WHY I HAD NOT GONE TO SEE MY GP, AND ALL THE A&E DOCTOR WOULD DO IS REFER ME TO SEE THE LIVER CONSULTANT AND MY GP COULD DO THAT QUICKER. I DID NOT EVEN SEE A DOCTOR WHILE I WAS THERE, WAS NOT EXAMINED NOTHING. I COULD NOT BELIEVE IT, I AM LIVID. I WILL BE MAKING AN OFFICIAL COMPLAINT AND PURSUING A CLINICAL NEGLIGENCE CLAIM, BUT FIRSTLY I WILL BE PHONING MY CONSULTANT HEAMOTOLOGIST FIRST THING IN THE MORNING, TO HOPEFULLY GET SOME PROPER MEDICAL ADVICE.
I HAVE BEEN EXPERIENCING SHARP PAINS IN MY LIVER TODAY, SO I WENT TO A&E. AS YOU KNOW I SUFFER FROM HAEMOPHILIA WHICH MEANS MY BLOOD DOES NOT CLOT VERY WELL, I TOLD THE TRIARGE NURSE ALL ABOUT MY HAEMOPHILIA AND MY HEPATITIS C AND MY BIOPSY AND THAT I FEARED I WAS BLEEDING INTURNALLY. HE ASKED MY WHY I HAD NOT GONE TO SEE MY GP, AND ALL THE A&E DOCTOR WOULD DO IS REFER ME TO SEE THE LIVER CONSULTANT AND MY GP COULD DO THAT QUICKER. I DID NOT EVEN SEE A DOCTOR WHILE I WAS THERE, WAS NOT EXAMINED NOTHING. I COULD NOT BELIEVE IT, I AM LIVID. I WILL BE MAKING AN OFFICIAL COMPLAINT AND PURSUING A CLINICAL NEGLIGENCE CLAIM, BUT FIRSTLY I WILL BE PHONING MY CONSULTANT HEAMOTOLOGIST FIRST THING IN THE MORNING, TO HOPEFULLY GET SOME PROPER MEDICAL ADVICE.
Monday, April 25, 2005
NEWSPAPERS
HI ALL SORRY I HAVE NOT POSTED FOR A WHILE, I HAVE BEEN A BIT BUSY (LOSING WEIGHT) HA HA YES I HAVE ACTUALLY LOST SOME NOT A LOT BUT SOME ABOUT 4lb. ON A MORE SERIOUS NOTE I RECEIVED AN EMAIL TODAY FROM MIKE A FRIEND OF MINE IT WAS A COPY OF AN ARTICLE IN A SCOTTISH NEWSPAPER, I HAVE COPY AND PASTED IT TO THIS POST, HAVE A LOOK IT MADE MY BLOOD BOIL.
Sunday Herald - 24 April 2005
Haemophiliacs blocked in bid for secret files
Hepatitis-infected campaigners told handing over vital documents would be ‘too expensive’By Judith Duffy, Health Correspondent
HAEMOPHILIACS have been refused acce ss to secret files which they believe could reveal how they were infected with hepatitis C through contaminated NHS blood products.
Campaigners requesting the release of classified documents under freedom of information legislation have had their demand turned down on the grounds of cost.
The Department of Health has also claimed that some of the documents have been destroyed. The 600 files contain information on blood policy decisions taken by the UK government between 1972 and 1986, during which time thousands became ill.
Mike Kenwright, a haemo-philiac from Cheshire, is one of the individuals infected by hepatitis C who asked for the documents.
He first made the request last year, when he was told they were part of an internal review to “clarify the facts surrounding the drive for self-sufficiency products in blood products in the UK in the 1970s and 1980s.”
The response from the Department of Health said ministers felt that it would be “prudent to wait” for the informal review to be completed before they replied.
When the Freedom of Information Act came into effect in January this year, Kenwright repeated his request for the documents using the new legislation.
He said: “The reply came back saying because it would cost more than £600, we couldn’t have them. The second reason given was that documents I asked for have probably been destroyed.”
The files have been kept secret since 1990, when the government refused to reveal their contents to patients who were suing after contracting HIV through the NHS.
According to court papers, judges who saw the documents believed that the government had a case to answer. But at a time when hundreds were dying from Aids, the judges recommended that those infected accept compensation rather than face a lengthy court battle.
Kenwright believes the files would reveal the government failed to heed warnings from the US about the dangers of using imported blood plasma products.
He said: “There is no doubt that the government was aware of the dangers, yet did nothing about it until HIV came along.
“A lot of people had been infected before that with hepatitis C, but they didn’t see hepatitis C as a danger.
“The actual time they think I was infected was not a life-threatening bleed. We weren’t allowed to make an informed decision. For most of my bleeds, I wouldn’t have touched the stuff. ”
Under the Freedom of Information Act, requests for information can be rejected where the cost to central government would exceed £600.
The reply from the Department of Health states that providing information on imported plasma in the early 1970s “would fall into this category”.
It explains this is because “officials would need to undertake a lengthy exam ination of the files for that period and consult with external organisations who were involved in the provision of imported plasma.”
The response goes on to say: “With regards to your request for documents which were subject to a Court of Appeal Hearing on September 20, 1990 in relation to the HIV litigation, following an extensive search of our records, we do not appear to have retained the documentation.
“Given that the litigation was settled nearly 15 years ago, it would appear the documents have been destroyed.”
Campaigners have repeatedly asked for a public inquiry into what has become known as “the biggest medical treatment disaster in the history of the NHS”.
Peter Mossman, the vice chairman of the Manor House Group, which was formed by haemophiliacs infected with hepatitis C, said he was “appalled” by the failure to release the documents.
He said: “I do not believe they have been destroyed. I think it is the biggest cover-up ever. What also appalls me is that they still insist they cannot have a public inquiry – it is just incredible.”
Bruce Norval, a haemophiliac from Fortrose, near Inverness, who was infected with hepatitis C, described it as a “total whitewash”.
He said: “This continual process of denying us access to information just proves that there is probably a case to be answered.”
He added: “We are talking about the deaths now of more than 200 Scots.
“If this was a railway crash, we would have eventually got a public inquiry.”
Norval added that refusing to release the documents due to cost reasons was an “obscenity”. He said: “Dying of old age is becoming a rare thing in haemophilia – the diseases we are infected with are myriad.
“They are telling us that £600 is a good enough excuse to deny us access to the truth about why we are dying.”
A spokeswoman for the Department of Health said the documents being used in the internal review had not been destroyed.
But she added: “There were some documents which were asked for in the Freedom of Information request relating to the court of appeal hearing with regards to the HIV litigation.
“We don’t seem to have retained these documents, given the fact that it was 1990.”
Sunday Herald - 24 April 2005
Haemophiliacs blocked in bid for secret files
Hepatitis-infected campaigners told handing over vital documents would be ‘too expensive’By Judith Duffy, Health Correspondent
HAEMOPHILIACS have been refused acce ss to secret files which they believe could reveal how they were infected with hepatitis C through contaminated NHS blood products.
Campaigners requesting the release of classified documents under freedom of information legislation have had their demand turned down on the grounds of cost.
The Department of Health has also claimed that some of the documents have been destroyed. The 600 files contain information on blood policy decisions taken by the UK government between 1972 and 1986, during which time thousands became ill.
Mike Kenwright, a haemo-philiac from Cheshire, is one of the individuals infected by hepatitis C who asked for the documents.
He first made the request last year, when he was told they were part of an internal review to “clarify the facts surrounding the drive for self-sufficiency products in blood products in the UK in the 1970s and 1980s.”
The response from the Department of Health said ministers felt that it would be “prudent to wait” for the informal review to be completed before they replied.
When the Freedom of Information Act came into effect in January this year, Kenwright repeated his request for the documents using the new legislation.
He said: “The reply came back saying because it would cost more than £600, we couldn’t have them. The second reason given was that documents I asked for have probably been destroyed.”
The files have been kept secret since 1990, when the government refused to reveal their contents to patients who were suing after contracting HIV through the NHS.
According to court papers, judges who saw the documents believed that the government had a case to answer. But at a time when hundreds were dying from Aids, the judges recommended that those infected accept compensation rather than face a lengthy court battle.
Kenwright believes the files would reveal the government failed to heed warnings from the US about the dangers of using imported blood plasma products.
He said: “There is no doubt that the government was aware of the dangers, yet did nothing about it until HIV came along.
“A lot of people had been infected before that with hepatitis C, but they didn’t see hepatitis C as a danger.
“The actual time they think I was infected was not a life-threatening bleed. We weren’t allowed to make an informed decision. For most of my bleeds, I wouldn’t have touched the stuff. ”
Under the Freedom of Information Act, requests for information can be rejected where the cost to central government would exceed £600.
The reply from the Department of Health states that providing information on imported plasma in the early 1970s “would fall into this category”.
It explains this is because “officials would need to undertake a lengthy exam ination of the files for that period and consult with external organisations who were involved in the provision of imported plasma.”
The response goes on to say: “With regards to your request for documents which were subject to a Court of Appeal Hearing on September 20, 1990 in relation to the HIV litigation, following an extensive search of our records, we do not appear to have retained the documentation.
“Given that the litigation was settled nearly 15 years ago, it would appear the documents have been destroyed.”
Campaigners have repeatedly asked for a public inquiry into what has become known as “the biggest medical treatment disaster in the history of the NHS”.
Peter Mossman, the vice chairman of the Manor House Group, which was formed by haemophiliacs infected with hepatitis C, said he was “appalled” by the failure to release the documents.
He said: “I do not believe they have been destroyed. I think it is the biggest cover-up ever. What also appalls me is that they still insist they cannot have a public inquiry – it is just incredible.”
Bruce Norval, a haemophiliac from Fortrose, near Inverness, who was infected with hepatitis C, described it as a “total whitewash”.
He said: “This continual process of denying us access to information just proves that there is probably a case to be answered.”
He added: “We are talking about the deaths now of more than 200 Scots.
“If this was a railway crash, we would have eventually got a public inquiry.”
Norval added that refusing to release the documents due to cost reasons was an “obscenity”. He said: “Dying of old age is becoming a rare thing in haemophilia – the diseases we are infected with are myriad.
“They are telling us that £600 is a good enough excuse to deny us access to the truth about why we are dying.”
A spokeswoman for the Department of Health said the documents being used in the internal review had not been destroyed.
But she added: “There were some documents which were asked for in the Freedom of Information request relating to the court of appeal hearing with regards to the HIV litigation.
“We don’t seem to have retained these documents, given the fact that it was 1990.”
Wednesday, April 20, 2005
GOOD NEWS ( I THINK )
I GOT FED UP WAITING FOR THE HOSPITAL TO RING ME BACK SO I PHONED JONATHAN'S NURSE, HE GAVE ME HER NUMBER (CHEERS MATE), SHE WAS VERY NICE.
WELL WHAT CAN I SAY, I THINK SHE GAVE ME GOOD NEWS, MY LIVER IS MILD TO MODERATELY INFLAMED, SLIGHT FIBROSIS AND NO BRIDGING WHATEVER THAT MEANS, BUT SHE SAID IT WAS GOOD. I STILL HAVE TO WAIT TO SEE MY CONSULTANT TO SEE WHERE WE GO NOW. I FEEL LIKE GOING TO THE PUB TO CELEBRATE, BUT I WONT.
ON A MUCH SADDER NOTE, A FELLOW HAEMOPHILIAC WHO CONTRACTED HEPATITIS C AND HIV THROUGH CONTAMINATED NHS BLOOD PRODUCTS HAS SADLY LOST HIS FIGHT FOR LIFE, ALTHOUGH I DID NOT PERSONALLY KNOW PETER, HE AND HIS WIFE CAROL HAVE DONE A GREAT DEAL FOR PEOPLE WITH HEP C AND I THANK THEM. I FEEL KIND OF GUILTY GETTING GOOD NEWS ON SUCH A SAD DAY.
I HOPE YOU WILL BE ABLE TO REST NOW PETER.
WELL WHAT CAN I SAY, I THINK SHE GAVE ME GOOD NEWS, MY LIVER IS MILD TO MODERATELY INFLAMED, SLIGHT FIBROSIS AND NO BRIDGING WHATEVER THAT MEANS, BUT SHE SAID IT WAS GOOD. I STILL HAVE TO WAIT TO SEE MY CONSULTANT TO SEE WHERE WE GO NOW. I FEEL LIKE GOING TO THE PUB TO CELEBRATE, BUT I WONT.
ON A MUCH SADDER NOTE, A FELLOW HAEMOPHILIAC WHO CONTRACTED HEPATITIS C AND HIV THROUGH CONTAMINATED NHS BLOOD PRODUCTS HAS SADLY LOST HIS FIGHT FOR LIFE, ALTHOUGH I DID NOT PERSONALLY KNOW PETER, HE AND HIS WIFE CAROL HAVE DONE A GREAT DEAL FOR PEOPLE WITH HEP C AND I THANK THEM. I FEEL KIND OF GUILTY GETTING GOOD NEWS ON SUCH A SAD DAY.
I HOPE YOU WILL BE ABLE TO REST NOW PETER.
BIOPSY RESULTS
IT HAS BEEN TWO WEEKS TODAY THAT I HAD MY BIOPSY, I WAS TOLD THAT IT WOULD TAKE TWO WEEKS FOR MY RESULTS TO COME THROUGH, SO I PHONED THE HOSPITAL AND WAS TOLD THEY DO NOT KNOW MY RESULTS BECAUSE THEY CANT FIND MY NOTES (ARGHHH). THEY SAID THEY WOULD CALL ME LATER (BET THEY DON'T), MY CONSULTANT'S SECRETARY IS OFF SICK SO I THINK THIS MY BE THE PROBLEM.
Sunday, April 17, 2005
Omniferon
I HAVE JUST BEEN SURFING SITE'S ABOUT HEP C AND I CAME ACROSS OMNIRERON, APPARENTLY ITS A DRUG THAT IS BEING TRIED HAS ANYONE HEARD OF IT.
STILL 18 STONE.
STILL 18 STONE.
Friday, April 15, 2005
LINK CRAZY
AFTER TWO MONTH'S OF TRYING TO ADD LINKS TO MY SITE, I FINALLY DID IT (I THINK) I WAS SO EXITED I WENT A BIT LINK CRAZY, BUT I DON'T CARE.
I AM STILL GETTING PAIN'S IN MY LIVER AFTER MY BIOPSY. IS THIS NORMAL ITS BEEN 9 DAYS NOW? THEY ARE JUST SHARP PAINS EVERY NOW AND THEN. I AM OFF TO WORK NOW, SEE YA.
I AM STILL GETTING PAIN'S IN MY LIVER AFTER MY BIOPSY. IS THIS NORMAL ITS BEEN 9 DAYS NOW? THEY ARE JUST SHARP PAINS EVERY NOW AND THEN. I AM OFF TO WORK NOW, SEE YA.
Tuesday, April 12, 2005
BACK TO WORK
THE LIVER BIOPSY PAIN HAS FADED A LOT, SO I WENT BACK TO WORK TODAY, I TOOK IT VERY SLOWLY AND IT WAS NOT THAT BAD ALTHOUGH I DID TAKE A FEW HOURS OFF THIS AFTERNOON.
I AM LUCKY WITH MY JOB, I DRIVE A BLACK TAXI SO I CAN COME AND GO AS I PLEASE, I HAVE A REGULAR CONTRACT IN THE MORNING AND AFTERNOON THAT I HAVE TO DO, I TAKE SEVEN SPECIAL NEEDS CHILDREN TO AND FROM THEIR SCHOOL, I SUB-CONTRACT TO SOCIAL SERVICES. THE KIDS ARE A BIT OF A HANDFUL (ALL BOYS), I AM NOT LOOKING FORWARD TO PICKING THEM UP WHEN I START TREATMENT !!!, I WILL HAVE TO DO IT, AS ITS MY ONLY SOURCE OF INCOME.
ON THE OTHER HAND I COULD CARRY ON WORKING FRIDAY AND SATURDAY NIGHTS, WITH THE DRUNKS GETTING IN AND OUT ABUSING ME AND MY CAB, I WILL BE ABLE TO INTRODUCE THEM TO "RIBA RAGE".
I AM LUCKY WITH MY JOB, I DRIVE A BLACK TAXI SO I CAN COME AND GO AS I PLEASE, I HAVE A REGULAR CONTRACT IN THE MORNING AND AFTERNOON THAT I HAVE TO DO, I TAKE SEVEN SPECIAL NEEDS CHILDREN TO AND FROM THEIR SCHOOL, I SUB-CONTRACT TO SOCIAL SERVICES. THE KIDS ARE A BIT OF A HANDFUL (ALL BOYS), I AM NOT LOOKING FORWARD TO PICKING THEM UP WHEN I START TREATMENT !!!, I WILL HAVE TO DO IT, AS ITS MY ONLY SOURCE OF INCOME.
ON THE OTHER HAND I COULD CARRY ON WORKING FRIDAY AND SATURDAY NIGHTS, WITH THE DRUNKS GETTING IN AND OUT ABUSING ME AND MY CAB, I WILL BE ABLE TO INTRODUCE THEM TO "RIBA RAGE".
Sunday, April 10, 2005
THE QUEEN, PAIN AND DIETS
HELLO BLOGGERS,
LASTNIGHT I WAS SITTING IN FRONT OF MY LAPTOP IN LOADS OF PAIN AND SELF PITY, SO I WROTE TO THE QUEEN ABOUT HEPATITIS C. I ASKED HER WHY MPs HAVE IGNORED MY LETTERS AND I ASKED HER FOR A PUBLIC ENQUIRY INTO HEPATITIS C CONTAMINATED BLOOD PRODUCT'S. I EVEN SENT HER A LINK TO MY BLOG. IF YOU READ THIS YOUR MAJESTY, I WOULD JUST LIKE TO SAY HELLO AND I HOPE YOUR BOYS WEDDING WENT OK.
DIETS.
I AM A BIT OF A FAT GIT AND I SMOKE TO MUCH. I HAVE TRIED DIETING SEVERAL TIMES, BUT MY WILLPOWER KEEPS LETTING ME DOWN. I REALLY DO NEED TO GET MY BODY SORTED OUT BEFORE I START TREATMENT.
I AM GOING TO POST MY WEIGHT EVERY SUNDAY EVENING, JUST AS A KICK UP THE BUM FROM ME TO ME. I HOPE THIS WILL HELP ENCOURAGE ME. I DID JOIN A GYM BEFORE MY BIOPSY, I WILL START GOING AS SOON AS THE PAIN STARTS TO FADE.
WEEK ONE. I AM 18 STONE
LASTNIGHT I WAS SITTING IN FRONT OF MY LAPTOP IN LOADS OF PAIN AND SELF PITY, SO I WROTE TO THE QUEEN ABOUT HEPATITIS C. I ASKED HER WHY MPs HAVE IGNORED MY LETTERS AND I ASKED HER FOR A PUBLIC ENQUIRY INTO HEPATITIS C CONTAMINATED BLOOD PRODUCT'S. I EVEN SENT HER A LINK TO MY BLOG. IF YOU READ THIS YOUR MAJESTY, I WOULD JUST LIKE TO SAY HELLO AND I HOPE YOUR BOYS WEDDING WENT OK.
DIETS.
I AM A BIT OF A FAT GIT AND I SMOKE TO MUCH. I HAVE TRIED DIETING SEVERAL TIMES, BUT MY WILLPOWER KEEPS LETTING ME DOWN. I REALLY DO NEED TO GET MY BODY SORTED OUT BEFORE I START TREATMENT.
I AM GOING TO POST MY WEIGHT EVERY SUNDAY EVENING, JUST AS A KICK UP THE BUM FROM ME TO ME. I HOPE THIS WILL HELP ENCOURAGE ME. I DID JOIN A GYM BEFORE MY BIOPSY, I WILL START GOING AS SOON AS THE PAIN STARTS TO FADE.
WEEK ONE. I AM 18 STONE
Saturday, April 09, 2005
TAKEN BACK TO HOSPITAL
I WAS IN A LOT OF PAIN THIS AFTERNOON, I PHONED THE HOSPITAL AND SPOKE TO A DOCTOR WHO SAID SHE THOUGHT THEY MIGHT HAVE PUNCTURED MY LUNG WHILE THEY WERE DOING THE BIOPSY AND I NEEDED TO GO BACK.
I WENT BACK AND HAD A CHEST X-RAY, LUCKILY THEY DIDN'T, THEY CALLED THE CONSULTANT IN (ON A SATURDAY), HE EXAMINED ME AND SAID HE COULDN'T FIND ANYTHING WRONG, IT WAS THE PAIN AFTER A BAD BIOPSY.
THANK GOD THERE WASN'T ANYTHING BADLY WRONG.
I WENT BACK AND HAD A CHEST X-RAY, LUCKILY THEY DIDN'T, THEY CALLED THE CONSULTANT IN (ON A SATURDAY), HE EXAMINED ME AND SAID HE COULDN'T FIND ANYTHING WRONG, IT WAS THE PAIN AFTER A BAD BIOPSY.
THANK GOD THERE WASN'T ANYTHING BADLY WRONG.
THE MORNING AFTER THE NIGHT BEFORE
THE PAIN KILLERS THAT THE Dr GAVE ME WERE VERY GOOD, I TOOK TWO LAST NIGHT AND THEY KNOCKED ME OUT UNTIL 11.00 THIS MORNING. I WAS IN THE SAME AMOUNT OF PAIN AS SOON AS THEY WORE OFF. IS THIS NORMAL TO BE IN THIS AMOUNT OF PAIN? AS SOON AS I START MOVING OR BREATHING HEAVY IT HURTS (OH NO MY SECRETS OUT YES I AM A HEAVY BREATHER).
Friday, April 08, 2005
PAIN IN THE LIVER
I HAVE HAD REALLY BAD PAIN IN MY LIVER FOR THE LAST FEW HOURS, MAILNLY AFTER I'VE EATEN. IT WAS SO BAD I HAD TO CALL THE DOCTOR OUT. HE GAVE ME SOME DIHYDROCODEINE, ENOUGH UNTIL MONDAY. I AM NOW GOING TO TAKE TWO, ORDER A DOMINO'S PIZZA, WATCH A FILM AND CHILL OUT.
BIOPSY NIGHTMARE
HI EVERYONE, I HAVE HAD MY BIOPSY AND WHAT AN ABSOLUTE NIGHTMARE IT WAS, I WAS UNLUCKY ENOUGH TO HAVE MY BIOPSY AT NORWICH'S BRAND NEW MULTI-MILLION POUND UNIVERSITY HOSPITAL.
I WILL NOW LIST WHAT HAPPENED TO ME, IT WAS LIKE SOMETHING OUT OF A CARRY ON FILM.
I WAS ADMITTED WEDNESDAY MORNING AT 8.30, I WAS SHOWN TO MY BED AND SOON AFTER A DOCTOR ARRIVED TO TAKE MY BLOOD, SHE COULD NOT FIND A TOURNIQUET SO SHE USED A LATEX GLOVE, WHEN SHE TIED THE GLOVE AROUND MY ARM IT PINCHED MY SKIN, SHE THEN PUT A CANULAR (I THINK THAT'S HOW YOU SPELL IT) IN, THE PAIN IN MY ARM WAS AGONY, I COULD NOT UNDERSTAND WHY I HAVE NEVER HAD A PROBLEM BEFORE. ANYWAY SHE TOOK MY BLOOD AND LEFT THE NEEDLE IN. A WHILE LATER A NURSE CAME TO GIVE ME MY FACTOR VIII, SHE TOOK OUT THE NEEDLE AND SAID "I AM NOT SURPRISED THAT WAS HURTING IT'S THE WRONG SIZE NEEDLE", NOW I AM STARTING TO GET PEEED OFF.
ANYWAY AFTER A FEW HOURS OF BLOOD TESTS AND FACTOR VIII THEY TAKE ME FOR MY BIOPSY, I WAS TAKEN TO A TREATMENT ROOM AND I MET THE DOCTOR WHO WAS DOING IT, HE EXPLAINED THE BIOPSY TO ME AND THEN STARTED TO DO IT. HE PUT THIS LONG THINGY INTO MY LIVER (AS I WAS COMING DOWN OFF THE CEILING) I WAS IN SO MUCH PAIN IT WAS UNTRUE, MY SHOULDER WAS AGONY , I COULD NOT BREATH PROPERLY, MY STOMACH HURT. I FOUND OUT LATER HE CAUGHT MY DIAPHRAGM AND THAT'S WHY I WAS IN SO MUCH PAIN. THEN THE GIT SAID THAT HE HAD NOT GOT A GOOD ENOUGH SAMPLE AND WANTED TO GO BACK IN, I TOLD HIM AS POLITELY AS I COULD TO PISS OFF.
I WAS TAKEN BACK TO THE WARD AND GIVEN SOME SERIOUS PAIN KILLERS, I WAS HAPPY THEN.
I HAD A BAD TURN LATER THEY PUT ME ON A ECG. BUT SOME MORE PAIN KILLERS SORTED ME OUT.
I WOKE LATER WITH SOMETHING DIGGING IN MY LEG, I FOUND THEY HAD LEFT A PAIR OF SCISSORS IN MY BED.
I JUST HOPE THEY GOT ENOUGH OF MY LIVER BECAUSE THEY ARE NOT HAVING ANYMORE, (JUST YET).
I WOULD LIKE TO SAY THANK YOU TO ALL THE NICE STAFF AT THE N & N,
THANK YOU TO JONATHAN & MIKE FOR VISITING ME,
THANK YOU FOR ALL YOUR COMMENTS ON JONATHAN'S BLOG,
AND A SPECIAL THANK YOU TO THE UNCARING BASTARD IN THE ULTRASOUND DEPT WHO, WHEN I ASKED HIM FOR SOME PAIN RELIEF TOLD ME HE WAS NOT A CHEMIST.
(WHAT GOES AROUND COMES AROUND)
I WILL NOW LIST WHAT HAPPENED TO ME, IT WAS LIKE SOMETHING OUT OF A CARRY ON FILM.
I WAS ADMITTED WEDNESDAY MORNING AT 8.30, I WAS SHOWN TO MY BED AND SOON AFTER A DOCTOR ARRIVED TO TAKE MY BLOOD, SHE COULD NOT FIND A TOURNIQUET SO SHE USED A LATEX GLOVE, WHEN SHE TIED THE GLOVE AROUND MY ARM IT PINCHED MY SKIN, SHE THEN PUT A CANULAR (I THINK THAT'S HOW YOU SPELL IT) IN, THE PAIN IN MY ARM WAS AGONY, I COULD NOT UNDERSTAND WHY I HAVE NEVER HAD A PROBLEM BEFORE. ANYWAY SHE TOOK MY BLOOD AND LEFT THE NEEDLE IN. A WHILE LATER A NURSE CAME TO GIVE ME MY FACTOR VIII, SHE TOOK OUT THE NEEDLE AND SAID "I AM NOT SURPRISED THAT WAS HURTING IT'S THE WRONG SIZE NEEDLE", NOW I AM STARTING TO GET PEEED OFF.
ANYWAY AFTER A FEW HOURS OF BLOOD TESTS AND FACTOR VIII THEY TAKE ME FOR MY BIOPSY, I WAS TAKEN TO A TREATMENT ROOM AND I MET THE DOCTOR WHO WAS DOING IT, HE EXPLAINED THE BIOPSY TO ME AND THEN STARTED TO DO IT. HE PUT THIS LONG THINGY INTO MY LIVER (AS I WAS COMING DOWN OFF THE CEILING) I WAS IN SO MUCH PAIN IT WAS UNTRUE, MY SHOULDER WAS AGONY , I COULD NOT BREATH PROPERLY, MY STOMACH HURT. I FOUND OUT LATER HE CAUGHT MY DIAPHRAGM AND THAT'S WHY I WAS IN SO MUCH PAIN. THEN THE GIT SAID THAT HE HAD NOT GOT A GOOD ENOUGH SAMPLE AND WANTED TO GO BACK IN, I TOLD HIM AS POLITELY AS I COULD TO PISS OFF.
I WAS TAKEN BACK TO THE WARD AND GIVEN SOME SERIOUS PAIN KILLERS, I WAS HAPPY THEN.
I HAD A BAD TURN LATER THEY PUT ME ON A ECG. BUT SOME MORE PAIN KILLERS SORTED ME OUT.
I WOKE LATER WITH SOMETHING DIGGING IN MY LEG, I FOUND THEY HAD LEFT A PAIR OF SCISSORS IN MY BED.
I JUST HOPE THEY GOT ENOUGH OF MY LIVER BECAUSE THEY ARE NOT HAVING ANYMORE, (JUST YET).
I WOULD LIKE TO SAY THANK YOU TO ALL THE NICE STAFF AT THE N & N,
THANK YOU TO JONATHAN & MIKE FOR VISITING ME,
THANK YOU FOR ALL YOUR COMMENTS ON JONATHAN'S BLOG,
AND A SPECIAL THANK YOU TO THE UNCARING BASTARD IN THE ULTRASOUND DEPT WHO, WHEN I ASKED HIM FOR SOME PAIN RELIEF TOLD ME HE WAS NOT A CHEMIST.
(WHAT GOES AROUND COMES AROUND)
Monday, April 04, 2005
BIOPSY
HI EVERYONE THIS WILL BE MY LAST POST FOR A WEEK, I AM GOING IN TOMORROW FOR MY LONG AWAITED BIOPSY.
FINGERS CROSSED FOR A POSITIVE RESULT, I WILL LET YOU KNOW HOW I GET ON.
I AM STILL DETERMINED ABOUT MY CAMPAIGN THIS IS MY NEW SITE FOR THOSE OF YOU WHO ARE INTERESTED. http://hometown.aol.co.uk/bartramstv/myhomepage/opinion.html
SEE YOU ALL SOON.
FINGERS CROSSED FOR A POSITIVE RESULT, I WILL LET YOU KNOW HOW I GET ON.
I AM STILL DETERMINED ABOUT MY CAMPAIGN THIS IS MY NEW SITE FOR THOSE OF YOU WHO ARE INTERESTED. http://hometown.aol.co.uk/bartramstv/myhomepage/opinion.html
SEE YOU ALL SOON.
Sunday, April 03, 2005
MUNG & ADUKI BEANS ????????????????
I HAVE BEEN BEEN OUT INTO NORWICH TODAY, BUYING BITS AND PIECES FOR MY SHORT STAY IN HOSPITAL NEXT WEEK. I WENT INTO A HEALTH FOOD SHOP AND FOUND MYSELF BUYING MUNG BEANS AND ADUKI BEANS, BELIEVE ME THIS IS NOT MY NORMAL FOOD. I HAVE BEEN SITTING AND LOOKING AT THESE SEED BEANY THINGS, AND THINKING WHAT THE HELL AM I GOING TO DO WITH THESE. THEY DO NOT LOOK VERY EDIBLE. I WILL GET ROUND TO DOING SOMETHING WITH THEM I PROMISE, PERHAPS PUT THEM IN A SANDWICH.
Wednesday, March 30, 2005
GOT MY DATES AT LAST
HI, SORRY I HAVE NOT POSTED FOR A COUPLE OF DAYS, MY KIDS & LISA (THE BETTER HALF) HAVE HAD THE FLU BADLY, I THINK THEY ARE GETTING OVER IT NOW. STRANGELY I DID NOT GET IT, THE FLU VIRUS PROBABLY GOT INTO ME FOUND THE HEP C AND DONE A SHARP EXIT, CANT SAY I BLAME IT I WOULDN'T WANT TO BE INSIDE ME EITHER. GOT A PHONE CALL OFF THE HOSPITAL TODAY I GO IN ON THE 5th HAVE THE BIOPSY ON THE 6th AND THEY WANT ME TO STAY IN 3 DAYS AFTER THE BIOPSY.
ON ANOTHER NOTE I HAVE BEEN READING JONATHAN'S BLOG THE LAST FEW DAYS, I CAN ONLY SAY THAT I REALLY FEEL FOR YOU JONATHAN, I DON'T KNOW WHAT YOU ARE GOING THROUGH, BUT YOU SOUND AS THOUGH YOU NEED SOMEONE TO TALK TO. IF YOU ARE READING THIS AND WANT A CHAT, E-MAIL ME OR GIVE ME A RING.
NOBODY IS JUDGING YOU WE ARE ALL SUPPORTING YOU.
ON ANOTHER NOTE I HAVE BEEN READING JONATHAN'S BLOG THE LAST FEW DAYS, I CAN ONLY SAY THAT I REALLY FEEL FOR YOU JONATHAN, I DON'T KNOW WHAT YOU ARE GOING THROUGH, BUT YOU SOUND AS THOUGH YOU NEED SOMEONE TO TALK TO. IF YOU ARE READING THIS AND WANT A CHAT, E-MAIL ME OR GIVE ME A RING.
NOBODY IS JUDGING YOU WE ARE ALL SUPPORTING YOU.
Sunday, March 27, 2005
MY CAMPAIGN WEBSITE
HI FOR ALL OF YOU THAT ARE INTERESTED ABOUT CAMPAIGNING PLEASE VISIT MY OTHER SITE. http://hometown.aol.co.uk/bartramstv/myhomepage/refpage.html
I HAVE HAD TO CLOSE THIS SITE DOWN, SOME PEOPLE THOUGHT I WAS GIVING AWAY TO MUCH EVIDENCE. SORRY.
I HAVE HAD TO CLOSE THIS SITE DOWN, SOME PEOPLE THOUGHT I WAS GIVING AWAY TO MUCH EVIDENCE. SORRY.
EASTER
HI ALL, MY DAUGHTER READ MY BLOG TODAY FOR THE FIRST TIME AND WANTED TO SAY A FEW WORDS. IT HAS BEEN A SAD DAY FOR HER TODAY AS HER DOG "HONEY" PASSED AWAY THIS MORNING, THE DOG HAS BEEN WITH HER SINCE SHE WAS BORN THEY WERE VERY CLOSE. SORRY I HAVE NOT POSTED FOR A COUPLE OF DAYS, I HAVE BEEN VERY BUSY. I STILL HAVE NOT GOT ANY FURTHER WITH THE HOSPITAL ABOUT THE DATES THEY WANT ME.
I GOT AN E-MAIL FROM ANOTHER HAEMOPHILIAC FRIDAY NIGHT, HE IS IN THE SAME SITUATION AS ME HE HAS SEVERE HAEMOPHILIA AND HAS NOT HAD A BIOPSY. HE WAS ASKING ME ABOUT HOW TO TELL PEOPLE AND "COMING OUT", I TOLD HIM NOT TO BE ASHAMED AS IT IS NOT HIS FAULT, BUT I DO KNOW HOW HE FEELS ITS NOT EASY. WHAT I WILL SAY TO HIM IF HE IS READING THIS, IS THAT THIS BLOG HAS HELPED ME NO END, IT GIVE YOU A CHANCE TO SAY WHAT YOU ARE FEELING AND TO TELL PEOPLE THAT YOU HAVE HEP C, WITHOUT FACING ANYBODY. THE BLOG ALSO HELPS BECAUSE YOU DON'T FEEL SO ISOLATED.
ANYWAY I AM OFF NOW, HAPPY EASTER ALL.
I GOT AN E-MAIL FROM ANOTHER HAEMOPHILIAC FRIDAY NIGHT, HE IS IN THE SAME SITUATION AS ME HE HAS SEVERE HAEMOPHILIA AND HAS NOT HAD A BIOPSY. HE WAS ASKING ME ABOUT HOW TO TELL PEOPLE AND "COMING OUT", I TOLD HIM NOT TO BE ASHAMED AS IT IS NOT HIS FAULT, BUT I DO KNOW HOW HE FEELS ITS NOT EASY. WHAT I WILL SAY TO HIM IF HE IS READING THIS, IS THAT THIS BLOG HAS HELPED ME NO END, IT GIVE YOU A CHANCE TO SAY WHAT YOU ARE FEELING AND TO TELL PEOPLE THAT YOU HAVE HEP C, WITHOUT FACING ANYBODY. THE BLOG ALSO HELPS BECAUSE YOU DON'T FEEL SO ISOLATED.
ANYWAY I AM OFF NOW, HAPPY EASTER ALL.
A MESSAGE FROM MY DAUGHTER, AGED 10
MY DAD IS GOING THROUGH WHAT YOU ARE GOING THROUGH.I THINK EVERYONE WILL FIGHT THIS THING AND GET BETTER!MY DAD IS A TAXI DRIVER AND HE MIGHT HAVE TO BE OF WORK FOR A WHILE! WHEN HE GOES INTO HOSPITEL. HE WILL STILL BE IN ON MY BIRTHDAY!WELL,I HOPE EVERYONE WILL FIGHT HEPATITIS C!
MILLONS OF PEOPLE ARE GOING THROUGH THIS AND EVERYONE NEEDS SUPPORT FROM FRIENDS AND FAMILY.
MILLONS OF PEOPLE ARE GOING THROUGH THIS AND EVERYONE NEEDS SUPPORT FROM FRIENDS AND FAMILY.
Tuesday, March 22, 2005
TITLE CHANGE
JUST A QUICK ONE, I ORIGINALLY CALLED MY BLOG THE SILENT KILLER, OVER THE LAST FEW WEEKS I HAVE BEEN READING OTHER HEP C BLOGS AND I CAN SEE LIGHT AT THE END OF THE TUNNEL. I HAVE NOW CHANGED MY BLOG TITLE TO BEATING HEPATITIS C, BECAUSE THAT'S WHAT I AM GOING TO DO, BEAT IT.
I GIVE UP WITH HOSPITALS
I PHONED THE HOSPITAL TODAY AS I SAID I WOULD, AND THEY STILL HAVE NOT SORTED OUT MY TREATMENT DATES, I WILL TRY AGAIN TOMORROW. I GOT TO GO NOW, NEED TO BE UP EARLY FOR WORK. SEE YA TOMORROW HOPEFULLY WITH SOME POSITIVE HOSPITAL NEWS.
Monday, March 21, 2005
BLOODY HOSPITALS
I WAITED ALL DAY TODAY FOR THE HOSPITAL TO PHONE ME, TO CONFIRM WHEN THEY ARE GOING ADMIT ME FOR MY BIOPSY, GUESS WHAT, YEAH YOU GOT IT, THEY DID NOT PHONE. I SHOULD HAVE CALLED THEM REALLY, BUT TO BE TRUTHFUL I WAS A BIT SCARED, WHAT A WIMP I HEAR YOU SAY. I WILL RING TOMORROW, I PROMISE.
Sunday, March 20, 2005
SUPPORT FOR EVERYONE
I HAVE JUST BEEN READING RONS BLOG AND THE "COMMENTS", PARTICULARLY COLLETE'S COMMENTS.
AS YOU KNOW I SUFFER FROM HAEMOPHILIA AND WAS GIVEN HEP C WHEN I WAS A KID, WHEN I STARTED DIGGING FOR ANSWERS ALL I WAS INTERESTED IN WAS "HAEMOPHILIA" HOW NARROW MINDED I WAS. WE ALL GOT OUR INFECTION SOMEWHERE. THIS VIRUS DOES NOT CARE ABOUT CLASS, BACKGROUND, BLACK OR WHITE, RICH OR POOR, IF YOUR ON DRUGS, OR IF YOU HAVE HAEMOPHILIA.
I HAVE NOTHING AGAINST DRUG USERS, I FEEL SORRY FOR THEM, DON'T BLAME THEM BLAME THE BASTARDS THAT GOT THEM ON THE DRUGS THE DEALERS.
I AM STILL CAMPAIGNING BUT NOW I AM DOING IT FOR EVERYONE.
ONE COMMENT COLLETE MADE ON RONS BLOG, "THAT HAEMOPHILIAC'S GOT THIS VIRUS UNINVITED", WELL I DON'T KNOW ANYBODY THAT BLOODY INVITED IT, BUT THE FACT IS WE HAVE GOT IT. SO LETS SUPPORT EACH OTHER AND BEAT IT.
A MESSAGE TO COLLETE.
I KNOW HOW CAMPAIGNING CAN GET UNDER YOUR SKIN, EVERYWHERE YOU GO FOR ANSWERS YOU GET BLANKED. I HAVE HAD MEETINGS WITH MPs WRITTEN TO THE PM, JOHN REID etc etc. I FULLY SUPPORT YOUR CAUSE AND THANK YOU FOR IT. BUT PLEASE REMEMBER HAEMOPLILIAC'S ARE NOT THE ONLY ONES AFFECTED, AND I AGREE WITH RON HIS SITE IS NOT THE PLACE TO CAMPAIGN, IT WOULD BE GOOD IF YOUR GOT YOUR OWN BLOG SITE (ITS FREE) AS I WOULD LIKE TO SEE SOME OF YOUR EVIDENCE.
AS YOU KNOW I SUFFER FROM HAEMOPHILIA AND WAS GIVEN HEP C WHEN I WAS A KID, WHEN I STARTED DIGGING FOR ANSWERS ALL I WAS INTERESTED IN WAS "HAEMOPHILIA" HOW NARROW MINDED I WAS. WE ALL GOT OUR INFECTION SOMEWHERE. THIS VIRUS DOES NOT CARE ABOUT CLASS, BACKGROUND, BLACK OR WHITE, RICH OR POOR, IF YOUR ON DRUGS, OR IF YOU HAVE HAEMOPHILIA.
I HAVE NOTHING AGAINST DRUG USERS, I FEEL SORRY FOR THEM, DON'T BLAME THEM BLAME THE BASTARDS THAT GOT THEM ON THE DRUGS THE DEALERS.
I AM STILL CAMPAIGNING BUT NOW I AM DOING IT FOR EVERYONE.
ONE COMMENT COLLETE MADE ON RONS BLOG, "THAT HAEMOPHILIAC'S GOT THIS VIRUS UNINVITED", WELL I DON'T KNOW ANYBODY THAT BLOODY INVITED IT, BUT THE FACT IS WE HAVE GOT IT. SO LETS SUPPORT EACH OTHER AND BEAT IT.
A MESSAGE TO COLLETE.
I KNOW HOW CAMPAIGNING CAN GET UNDER YOUR SKIN, EVERYWHERE YOU GO FOR ANSWERS YOU GET BLANKED. I HAVE HAD MEETINGS WITH MPs WRITTEN TO THE PM, JOHN REID etc etc. I FULLY SUPPORT YOUR CAUSE AND THANK YOU FOR IT. BUT PLEASE REMEMBER HAEMOPLILIAC'S ARE NOT THE ONLY ONES AFFECTED, AND I AGREE WITH RON HIS SITE IS NOT THE PLACE TO CAMPAIGN, IT WOULD BE GOOD IF YOUR GOT YOUR OWN BLOG SITE (ITS FREE) AS I WOULD LIKE TO SEE SOME OF YOUR EVIDENCE.
BIOPSY DATE
HI ALL, I HOPE MY BLOG IS WORKING NOW I REALLY MESSED IT UP.
I GOT A PHONE CALL OFF THE NORFOLK & NORWICH HOSPITAL ON THURSDAY, TELLING ME THAT MY BIOPSY WILL BE ON THE 6th APRIL, WHEN I ASKED THEM ABOUT MY TREATMENT FOR MY BLEEDING DISORDER, THEY TOLD ME THAT THEY HAD NOT OGANISED ANY TREATMENT FOR ME (BLESS THEM), I TOLD THEM THAT I WAS NOT HAPPY WITH THEM AS POLITELY AS I COULD. THEY ARE GOING TO RING ME TOMORROW AND CONFIRM TREATMENT AND DATES.
CAN ANY ONE TELL ME HOW TO ADD LINKS TO MY BLOG? I AM NOT VERY COMPUTER LITERATE, AS YOU MAY HAVE ALREADY GUESSED.
I GOT A PHONE CALL OFF THE NORFOLK & NORWICH HOSPITAL ON THURSDAY, TELLING ME THAT MY BIOPSY WILL BE ON THE 6th APRIL, WHEN I ASKED THEM ABOUT MY TREATMENT FOR MY BLEEDING DISORDER, THEY TOLD ME THAT THEY HAD NOT OGANISED ANY TREATMENT FOR ME (BLESS THEM), I TOLD THEM THAT I WAS NOT HAPPY WITH THEM AS POLITELY AS I COULD. THEY ARE GOING TO RING ME TOMORROW AND CONFIRM TREATMENT AND DATES.
CAN ANY ONE TELL ME HOW TO ADD LINKS TO MY BLOG? I AM NOT VERY COMPUTER LITERATE, AS YOU MAY HAVE ALREADY GUESSED.
Tuesday, March 15, 2005
I MESSED UP
HI I DELETED MY BLOG BY ACCIDENT I COPY AND PASTED WHAT WAS ON THERE. NOW I WILL TRY AGAIN
Friday, March 11, 2005
TELLING PEOPLE
HOW DO YOU TELL PEOPLE ?I WORK IN AN ENVIRONMENT THAT'S VERY IGNORANT ABOUT HEP C, NOT THERE FAULT REALLY ITS NOT THE SOUGHT OF THING YOU TALK ABOUT IN GENERAL CONVERSATION. I WORK WITH PROBABLY 200+ PEOPLE ONLY ABOUT THREE OF THEM I CLASS AS FRIENDS. IT CAME OUT TODAY ABOUT MY HEP C BY COMPLETE ACCIDENT, I WAS ACTUALLY EMBARRASSED ABOUT IT, I FOUND MYSELF PLAYING IT DOWN. I WAS LOOKED AT LIKE I WAS A WALKING DISEASE AND THEY MIGHT CATCH SOMETHING!!!!!!!!!I JUST MADE MY EXCUSES AND LEFT.WHY SHOULD I FEEL LIKE THIS ?HOW CAN YOU TELL PEOPLE LIKE THIS ?ARRRRRRGHHHH
posted by STEVE at 11.3.05 0 comments
Thursday, March 10, 2005
FEELING POSITIVE
HI, IM FEELING MORE POSITIVE TODAY, I SPOKE TO JONATHAN VIA E-MAIL LAST NIGHT, HE PUT MY MIND AT REST. I ALSO HAD MY FIRST "COMMENTS" ON MY BLOG THAT WAS GOOD.TALKED TO MY OLD CONSULTANT BRIAN COLVIN IN LONDON TODAY, THAT WAS NICE HE TREATED ME WHEN I WAS A KID NOT SEEN HIM FOR ABOUT TWENTY YEARS ITS IRONIC REALLY HE IS A VERY GOOD FAMILY FRIEND BUT HE IS PROBABLY THE ONE WHO GAVE ME THIS VIRUS. NO HARD FEELINGS BRIAN.I SAW JONATHAN TODAY VERY BRIEFLY, HE DOES LOOK WELL CONSIDERING THE TREATMENT HE IS ON. WELL DONE MATE KEEP IT UP.I GOT A PHONE CALL TONIGHT FROM A FELLOW HAEMOPHILIAC AND HEP C SUFFERER MIKE COLYER. HE HAS DONE A VAST AMOUNT OF CAMPAIGNING FOR PEOPLE WITH HEP C, THE UK GOVENMENT MUST BE WELL PEEEED OFF WITH HIM, HE JUST WILL NOT LET THEM REST. GOOD FOR YOU MIKE KEEP IT UP.
posted by STEVE at 10.3.05 0 comments
SUPPORTING EVIDENCE
LAST YEAR I RECEIVED A DOCUMENT FROM A HEP C SUFFERER IN WALES, THIS DOCUMENT IS A COPY OF AN "OFFICIAL GOVERNMENT REPORT", IT SHOWS THAT THE BLOOD WE WERE GIVEN WAS KNOWN TO BE CONTAMINATED WITH A TYPE OF NON A-NON B HEPATITIS. IT DOES GO ON ABOUT HAEMOPHILIA A LOT AND I AM NOT BLIND TO THE FACT THAT YOU DON'T HAVE TO HAVE HAEMOPHILIA TO HAVE HEP C.THIS DOCUMENT CONDEMNS BPL LABORATORIES IN LONDON, THEY DEAL WITH MOST BLOOD PRODUCTS IN THE UK.I HAVE SENT THIS DOCUMENT TO TONY BLAIR PM AND JOHN REID SECRETARY OF STATE FOR HEALTH AND ASKED QUESTIONS. GUESS WHAT, THEY DID NOT ANSWER ME.IF ANYONE WANTS A COPY PLEASE E-MAIL ME AND I WILL ATTACH IT TO E-MAIL AND SEND IT BACK TO YOU.
posted by STEVE at 10.3.05 0 comments
Wednesday, March 09, 2005
BIOPSY
I WENT TO HOSPITAL TODAY, THAT WAS FUN (NOT). I HAVE GOT TO HAVE BIOPSY IN THE NEXT 2-3 WEEKS, I AM REALLY LOOKING FOWARD TO THAT, AND THEN START TREATMENT, WONDERFULL WHAT LUCKY PEOPLE WE ARE.I DONT KNOW IF ANYBODY IS READING THIS BUT IT GETTING IT OFF MY CHEST.IM GOING NOW BECAUSE IM PISSED OFF AND SHIT SCARED. SEE YA!!!!!!!!!!!!!!!!!!
posted by STEVE at 9.3.05 3 comments
Monday, March 07, 2005
NEW FRIENDS
I MET A GUY TODAY IN THE SAME SITUATION TO ME, ALTHOUGH WE ARE FROM TOTALLY DIFFERENT BACKGROUNDS, I FELT WE HAD A LOT IN COMMON, HE GAVE ME SOME VERY GOOD ADVICE ABOUT CONFRONTING HEP C AND NOT RUNNING AWAY. I WAS SCARED BY HOW MUCH I DID NOT KNOW ABOUT THIS VIRUS, I HAVE SPENT A LONG TIME SAYING WHY ME ! AND NOT ENOUGH TIME FINDING OUT ABOUT WHAT IS HAPPENING INSIDE ME. MY DOCTORS COULD BE MORE FORTHCOMING WITH INFORMATION BUT THAT'S ANOTHER STORY.I WILL NOT NAME THE GUY I MET TODAY WITHOUT ASKING HIM, BUT I FELT I HAD KNOWN HIM ALL MY LIFE, I SUPPOSE WE WENT THROUGH THE SAME SOUGHT OF THINGS IN OUR SEPARATE LIVES, WHAT I AM TRYING TO SAY IS THANKS TO "HEP C" I HAVE MADE A NEW FRIEND WHO WAS WILLING TO OPEN UP HIS PRIVATE LIFE TO A COMPLETE STRANGER. I HOPE THIS FRIENDSHIP DEVELOPS.THANKS AGAIN. YOU KNOW WHO YOU ARE.
posted by STEVE at 7.3.05 0 comments
STARTING OUT
HI I HAVE CREATED THIS BLOG SO I CAN SHARE INFORMATION ON HEPATITIS C WITH YOU, I HAVE HAEMOPHILIA AND WAS INFECTED WITH HEP C THROUGH CONTAMINATED NHS BLOOD PRODUCTS. I AM NOT CURRENTLY ON TREATMENT MAINLY BECAUSE I AM SCARED TO, ITS NOT NICE.I FELT I HAD TO PUBLISH THIS SITE, AS I HAVE READ OTHERS "BLOG SITES" AND I ADMIRE THEM FOR SPEAKING OUT, SO THIS IS REALLY TO SUPPORT THEM.I HAVE HAD MEETINGS WITH CHARLES CLARKE THE NEW HOME SECRETARY, TO TRY AND PUSH FOR A PUBLIC ENQUIRY, BUT NOT HAD A LOT OF JOY. I BELIEVE THE UK GOVENMENT ARE RESPONSABLE FOR THIS MASS POISIONING.I WILL KEEP YOU INFORMED OF ANY PROGRESS.IF ANYONE READING THIS WHO HAS NOT ALREADY BEEN IN CONTACT WITH THE SKIPTON FUND PLEASE CLICK ON LINK.http://www.theskiptonfund.org
posted by STEVE at 7.3.05 0 comments
Sunday, March 06, 2005
THE SKPTON FUND
THE ABOVE LINK IS WRONG THE CORRECT LINK FOR THE SKIPTON FUND IShttp://www.skiptonfund.org
posted by STEVE at 6.3.05 0 comments
Friday, March 11, 2005
TELLING PEOPLE
HOW DO YOU TELL PEOPLE ?I WORK IN AN ENVIRONMENT THAT'S VERY IGNORANT ABOUT HEP C, NOT THERE FAULT REALLY ITS NOT THE SOUGHT OF THING YOU TALK ABOUT IN GENERAL CONVERSATION. I WORK WITH PROBABLY 200+ PEOPLE ONLY ABOUT THREE OF THEM I CLASS AS FRIENDS. IT CAME OUT TODAY ABOUT MY HEP C BY COMPLETE ACCIDENT, I WAS ACTUALLY EMBARRASSED ABOUT IT, I FOUND MYSELF PLAYING IT DOWN. I WAS LOOKED AT LIKE I WAS A WALKING DISEASE AND THEY MIGHT CATCH SOMETHING!!!!!!!!!I JUST MADE MY EXCUSES AND LEFT.WHY SHOULD I FEEL LIKE THIS ?HOW CAN YOU TELL PEOPLE LIKE THIS ?ARRRRRRGHHHH
posted by STEVE at 11.3.05 0 comments
Thursday, March 10, 2005
FEELING POSITIVE
HI, IM FEELING MORE POSITIVE TODAY, I SPOKE TO JONATHAN VIA E-MAIL LAST NIGHT, HE PUT MY MIND AT REST. I ALSO HAD MY FIRST "COMMENTS" ON MY BLOG THAT WAS GOOD.TALKED TO MY OLD CONSULTANT BRIAN COLVIN IN LONDON TODAY, THAT WAS NICE HE TREATED ME WHEN I WAS A KID NOT SEEN HIM FOR ABOUT TWENTY YEARS ITS IRONIC REALLY HE IS A VERY GOOD FAMILY FRIEND BUT HE IS PROBABLY THE ONE WHO GAVE ME THIS VIRUS. NO HARD FEELINGS BRIAN.I SAW JONATHAN TODAY VERY BRIEFLY, HE DOES LOOK WELL CONSIDERING THE TREATMENT HE IS ON. WELL DONE MATE KEEP IT UP.I GOT A PHONE CALL TONIGHT FROM A FELLOW HAEMOPHILIAC AND HEP C SUFFERER MIKE COLYER. HE HAS DONE A VAST AMOUNT OF CAMPAIGNING FOR PEOPLE WITH HEP C, THE UK GOVENMENT MUST BE WELL PEEEED OFF WITH HIM, HE JUST WILL NOT LET THEM REST. GOOD FOR YOU MIKE KEEP IT UP.
posted by STEVE at 10.3.05 0 comments
SUPPORTING EVIDENCE
LAST YEAR I RECEIVED A DOCUMENT FROM A HEP C SUFFERER IN WALES, THIS DOCUMENT IS A COPY OF AN "OFFICIAL GOVERNMENT REPORT", IT SHOWS THAT THE BLOOD WE WERE GIVEN WAS KNOWN TO BE CONTAMINATED WITH A TYPE OF NON A-NON B HEPATITIS. IT DOES GO ON ABOUT HAEMOPHILIA A LOT AND I AM NOT BLIND TO THE FACT THAT YOU DON'T HAVE TO HAVE HAEMOPHILIA TO HAVE HEP C.THIS DOCUMENT CONDEMNS BPL LABORATORIES IN LONDON, THEY DEAL WITH MOST BLOOD PRODUCTS IN THE UK.I HAVE SENT THIS DOCUMENT TO TONY BLAIR PM AND JOHN REID SECRETARY OF STATE FOR HEALTH AND ASKED QUESTIONS. GUESS WHAT, THEY DID NOT ANSWER ME.IF ANYONE WANTS A COPY PLEASE E-MAIL ME AND I WILL ATTACH IT TO E-MAIL AND SEND IT BACK TO YOU.
posted by STEVE at 10.3.05 0 comments
Wednesday, March 09, 2005
BIOPSY
I WENT TO HOSPITAL TODAY, THAT WAS FUN (NOT). I HAVE GOT TO HAVE BIOPSY IN THE NEXT 2-3 WEEKS, I AM REALLY LOOKING FOWARD TO THAT, AND THEN START TREATMENT, WONDERFULL WHAT LUCKY PEOPLE WE ARE.I DONT KNOW IF ANYBODY IS READING THIS BUT IT GETTING IT OFF MY CHEST.IM GOING NOW BECAUSE IM PISSED OFF AND SHIT SCARED. SEE YA!!!!!!!!!!!!!!!!!!
posted by STEVE at 9.3.05 3 comments
Monday, March 07, 2005
NEW FRIENDS
I MET A GUY TODAY IN THE SAME SITUATION TO ME, ALTHOUGH WE ARE FROM TOTALLY DIFFERENT BACKGROUNDS, I FELT WE HAD A LOT IN COMMON, HE GAVE ME SOME VERY GOOD ADVICE ABOUT CONFRONTING HEP C AND NOT RUNNING AWAY. I WAS SCARED BY HOW MUCH I DID NOT KNOW ABOUT THIS VIRUS, I HAVE SPENT A LONG TIME SAYING WHY ME ! AND NOT ENOUGH TIME FINDING OUT ABOUT WHAT IS HAPPENING INSIDE ME. MY DOCTORS COULD BE MORE FORTHCOMING WITH INFORMATION BUT THAT'S ANOTHER STORY.I WILL NOT NAME THE GUY I MET TODAY WITHOUT ASKING HIM, BUT I FELT I HAD KNOWN HIM ALL MY LIFE, I SUPPOSE WE WENT THROUGH THE SAME SOUGHT OF THINGS IN OUR SEPARATE LIVES, WHAT I AM TRYING TO SAY IS THANKS TO "HEP C" I HAVE MADE A NEW FRIEND WHO WAS WILLING TO OPEN UP HIS PRIVATE LIFE TO A COMPLETE STRANGER. I HOPE THIS FRIENDSHIP DEVELOPS.THANKS AGAIN. YOU KNOW WHO YOU ARE.
posted by STEVE at 7.3.05 0 comments
STARTING OUT
HI I HAVE CREATED THIS BLOG SO I CAN SHARE INFORMATION ON HEPATITIS C WITH YOU, I HAVE HAEMOPHILIA AND WAS INFECTED WITH HEP C THROUGH CONTAMINATED NHS BLOOD PRODUCTS. I AM NOT CURRENTLY ON TREATMENT MAINLY BECAUSE I AM SCARED TO, ITS NOT NICE.I FELT I HAD TO PUBLISH THIS SITE, AS I HAVE READ OTHERS "BLOG SITES" AND I ADMIRE THEM FOR SPEAKING OUT, SO THIS IS REALLY TO SUPPORT THEM.I HAVE HAD MEETINGS WITH CHARLES CLARKE THE NEW HOME SECRETARY, TO TRY AND PUSH FOR A PUBLIC ENQUIRY, BUT NOT HAD A LOT OF JOY. I BELIEVE THE UK GOVENMENT ARE RESPONSABLE FOR THIS MASS POISIONING.I WILL KEEP YOU INFORMED OF ANY PROGRESS.IF ANYONE READING THIS WHO HAS NOT ALREADY BEEN IN CONTACT WITH THE SKIPTON FUND PLEASE CLICK ON LINK.http://www.theskiptonfund.org
posted by STEVE at 7.3.05 0 comments
Sunday, March 06, 2005
THE SKPTON FUND
THE ABOVE LINK IS WRONG THE CORRECT LINK FOR THE SKIPTON FUND IShttp://www.skiptonfund.org
posted by STEVE at 6.3.05 0 comments
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